Have some questions concerning lifestyle and work

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Regular Member

Date Joined Mar 2010
Total Posts : 42
   Posted 3/22/2010 10:34 PM (GMT -7)   
Hello, my name is John, I'm 20yrs old, and although it has not been confirmed that i have Crohn's all the tests so far have pointed towards it or been inconclusive.
So i was hoping to find out a little of what i have to look forward to if i have this.

What kind of food should i avoid at all costs?
Will i have to give up on getting my college degree? (failing classes already due to attendance)
Can i still work at a normal job?
If not will i be eligible for supplementary income such as SSI disability?

If you have any information that might ease my mind a little or help me come to terms with what i have a good chance of dealing with
i appreciate any information i can get.

Thank You!

Regular Member

Date Joined Dec 2007
Total Posts : 414
   Posted 3/23/2010 2:35 AM (GMT -7)   
Food can be pretty individualistic - when I was first diagnosed I was recommended by my doc to eat low fibre-low fat diet, I pretty much stick to that to this day.
You shouldn't have to give up on your college degree - I only have experience with the UK system but I registered with disability and here this gives extenuating circumstances so you can repeat modules without the marks being capped and they're really lenient on absense, its best you get in contact with the disability department and discuss with them.
You can still work at a normal job, all jobs I've worked for have allowed the odd special provision for my Crohn's - such as not kicking up a fuss if I go to the toilet several times during a shift, keeping water nearby etc.
Hopefully someone will be along soon who can give you more relevant information to where you're from!

Regular Member

Date Joined Oct 2009
Total Posts : 253
   Posted 3/23/2010 4:07 AM (GMT -7)   
lilcrohnie is right, food is very individual... most of us seem to have trouble with raw vegetables though! Personally I do well with pretty bland white food... like mashed potatoes, white bread, rice, oatmeal cream of wheat, sorta thing. If you do want to each vegetables, cook the hell outta them. Also I need to stay away from sugary food, greasy/oily/fatty food (think KFC sorta deal) and processed foods.

Do'nt give up on college! I'm in 2nd year university and have essentially been in a flare since a month into first year classes. I just scaled back the amount of classes I took (I'm only taking 3/semester instead of 5) and have told my teachers that I'm sick and won't always make it to class and alot of them are willing to help me out so that I can still learn/pass everything.

If you get into remission a normal job will be totally realistic... but before then you might be too tired to work very much. I'm not sure about the disability.
Good luck and feel better!
female 20, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin

Regular Member

Date Joined Mar 2009
Total Posts : 452
   Posted 3/23/2010 5:12 AM (GMT -7)   
Don't let the disease get to you.  You sound like you are ready to throw in the towel.  I say, Don't.  I am 36 right now and was diagnosed at 15.  I missed my last two years of High School because I didn't know the disease and I let it beat me.  After my first year of staying in bed all day, bored out of my mind, I said enough is enough.  I got home study and finished HS ontime.  I went to college.  During the college years I had my problems and flares, but I would not let it stop me.  I did graduate with both an Associates and a Bachalors degree.  Want to get a real kick...my Associates degree is in cooking.  When I left school, I worked cooking in restaurants.  Imagine a person with CD standing on the hotline with tons of meals to make and needing to go.
Long story short, I am still in the hospitality industry.  I left the kitchen but not because of the CD.  I refused to let it run my life.  Right now I do purchasing for a 5 Star Hotel.  My boss knows about my CD so if I have problems, he is understanding.  Every 8 weeks now, I need off for my Remicade infusions.  I use sick time, but my boss know ahead of time.
Needless to say, you can lead a somewhat normal life.  It is possible.  Yes there will be bad days.  Living with CD is not easy...but you adapt.  The big thing to remember is not to let it beat you.  And if you do get depressed (and we all do), don't be ashamed to get help for it.  Also, you can always come here to vent and look for some help.  There are people here from all over the world with different types of CD and have it in various stages.  We will all help you if we can.
Feel better and let us know how you are doing.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/23/2010 6:08 AM (GMT -7)   
Yes John there is life with this disease. I have had it for nearly 35 years. Since my diagnosis at 18, I have had marriage, 3 children, 5 grandchildren, been at the same job for 20 years. Had a few bumps in the road along the way, but with the right treatment and diet for "you", you can still have a great life. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

artist guy
Veteran Member

Date Joined Jan 2010
Total Posts : 1373
   Posted 3/23/2010 6:58 AM (GMT -7)   

I won 1,000 races as a horse jockey with cd, got injured with broken neck, but cd didn't force me out, my cd forced me out of work now and Iam in state disability and have applied for ssdi, but I'm 59 and have had cd for 40 years, good luck listen to other people with cd here and they're positive get good dr and go on your proper med's, don't give up your degree.


artist guy

Regular Member

Date Joined May 2009
Total Posts : 159
   Posted 3/23/2010 7:22 AM (GMT -7)   
Hello John!!!Welcome! Keep going, do not pass go!!!On the crappy(yep crappy) days, I do as my daddy taught me as an 18 year old, facing this dx. He said,"just put one foot in front of the other" Comming to this forum ,it has saved my spirit. I, like Gail, have 2 wonderful kids,3 grandkids,and friends. Try to remember to smile. It really makes a difference!!!yeah

Mary Lynn

Regular Member

Date Joined Mar 2010
Total Posts : 42
   Posted 3/23/2010 12:59 PM (GMT -7)   
Thank you guys for the feed back and encouragement, i have been down on myself lately because of the pain and constant trips
to the bathroom. The doctors want to do more tests to be absolutely sure i have Crohn's, but like i said it seems very likely i do.
Its good to know that i might not have to give up on work and school.

Thank you guys again, and i hope you guys are doing well at the moment. I'll stop in regularly to check up on you guys and try to keep you
updated on how my tests go. :-)

New Member

Date Joined Mar 2010
Total Posts : 11
   Posted 3/23/2010 1:12 PM (GMT -7)   
Definately don't give up! I'm 23 years old and some weeks it's hard but I have a 40 hour a week job and at one point I was a full time student. It took me 3 years to finish at a 2 year university with me working a part time job but I did it! Below is a website my mom found for me about social security disability. Now I don't want to bore you about everything I've had to go through because like all of us I could write a novel. Just please don't give up and if you have any questions about treatments I've done/i'm on let me know! And if you are not happy with the diagnosis you have don't settle on a certain specialist. I am now on my 5th and other than my husband he is the greatest thing that has happened to me. lol

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