starting humira and joined GEM project/a clinical trial

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Date Joined Oct 2009
Total Posts : 253
   Posted 3/23/2010 10:16 AM (GMT -7)   
I went to see my GI this morning and it looks like the imuran isn't working to keep me in remission since I stopped the prednisone 3 days ago and immediately flared up. I'm back on 20 mg of prednisone at the moment and scheduled to start humira this week. I'd love to hear any happy stories about it since reading up on it has me a bit freaked out! But I guess reading up on anynew drug isn't the greatest for a crohnie's psyche...

Another note: I just joined a clinical trial with my GI and am in the control group. They are testing a specific algorithm of treatment (as opposed to just trial and error) where if something doesn't work, they move to the next drug within a few months. I suppose it's a bit more aggressive... she says this will be a good direction to go with my treatment and I trust her!

Also my (healthy) sister and I are looking into joining the GEM project with Mount Sinai... I'm looking forward to us being able to do our parts to help find a cure!
female 20, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, moving onto humira injections, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin

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