I just had surgery last week to get rid of my awful colon and now I've got a permanent ileo. They tried to talk to me about a j-pouch option but I didn't even consider it. I'm done with diarrhea. Done. I'm obviously really new to this but I already love the freedom of being able to LIVE without living in the bathroom or wondering where a bathroom is, and I can actually eat food, which is amazing (and something you should be ABLE TO DO). It's really an individual decision, but to me...if you're going more than like 5 times a day and feeling crappy and still watching what you eat, it's worth consideration for sure.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder...
Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently on: 25mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Vesicare (for urinary retention).