Getting scoped during remission

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What A Life
Regular Member

Date Joined Mar 2010
Total Posts : 116
   Posted 3/25/2010 6:09 AM (GMT -7)   
I don't really take any meds consistently, it's more on a when-needed basis. I know many people have many different opinions and we should always stay up to date on our meds. However, a question I never had answered that I asked before, was when you are all in remission, do you still schedule yearly/bi-yearly scopes? Honestly, like we all know, even if you feel good; your body could be reaping havoc on itself inside. Thus, I was just wondering for any of those in remission if you still get scoped as a precautionary measure. I figure if I keep going each year, at least they would be able to tell if I'm still doing okay or not on my current regiment of diet and exercise.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/25/2010 6:31 AM (GMT -7)   
I don't get scoped, but not for the reasons you would think. But...I do other testing every 2 years or so to make sure everything is okay in there. I don't do scopes because I have a lot of adhesions that has caused the left side of my colon to adhere to my body cavity and the doc is scared he will perforate me if we do scopes. So instead I do CT Enterography and SBFT and that works well for me. If you are able to do scopes I would make sure you are doing them yearly, if you are not going to take meds. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined May 2006
Total Posts : 1177
   Posted 3/25/2010 7:25 AM (GMT -7)   
My husband's GI goes by symptoms and blood work. When he goes in every 6 months, he gets blood work for inflammation markers and for his kidney and liver function. If he finds his inflammation markers raised, even without symptoms, I think he'd then recommend a colonoscopy. His GI considers a colonoscopy pretty invasive if you are feeling well, and there are no indications of inflammation.

Of course my husband's case is such that usually anytime he has inflammation it shows up in his blood work. I know some people have active disease even when their inflammation markers are normal, so I think the decision of when a colonoscopy is warranted is based on the individual and the features of their disease.

Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission

What A Life
Regular Member

Date Joined Mar 2010
Total Posts : 116
   Posted 3/25/2010 9:08 AM (GMT -7)   
Yeah; constant bloodwork might be something for me to look into. I don't know if inflammation shows up in my blood or not. I recall really just getting a lot of bloodwork done once I was taking Remicade.
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.

Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 3/25/2010 3:23 PM (GMT -7)   
I go to my GI every 6 months if things are going well. He orders blood work and that is it. The only time he scopes is when I am having symptoms. He will then do a sigmoidoscopy without prep since my worst problems are in the last couple of inches of the colon. That tells him whether there is inflammation or where the bleeding is coming from. We can then talk about treatment of those symptoms and hopefully the treatment works (Pred etc.).

The problem with relying on blood work alone is that some types of Crohn's don't show in the blood work. I have been almost passing out from bleeding so much, in an acute flare, but it is all in the last 2 inches of my colon, so the blood work doesn't show any markers. I have only had full colonoscopies when I was first diagnosed, and then when I was hospitalized last year. My GI feels that since I have already been diagnosed it is not necessary to put me through the prep etc. unless we feel there is something new to learn.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Nexium, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.

What A Life
Regular Member

Date Joined Mar 2010
Total Posts : 116
   Posted 3/25/2010 4:01 PM (GMT -7)   
See I don't mind the prep too much lol... I mean, yes it sucks... But I normally say "I'll stuff my face with whatever I want no matter if it upsets my stomach cause it's all coming back out in an hour anyways." lol Not the healthiest way to look at it; but it's one good way for me to look at a night of "prepping." I feel it's like your body gets to "reset" itself as well.
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.

Veteran Member

Date Joined Nov 2007
Total Posts : 4413
   Posted 3/25/2010 4:24 PM (GMT -7)   
I can survive the prep, but my experience with colonoscopies is that it takes me weeks for my digestive system to settle down afterwards. I am currently in remission and taking Pentasa daily. My GI says I only need a colonoscopy every three to five years, but more often if I go back into a flare.
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 3/25/2010 6:57 PM (GMT -7)   
I just had a colonoscopy last fall and my GI recommends I have one in 3 (maybe 4) years.
500 mg of Pentasa 4 times a day, 1 Florastor 2 times a day, 4 mg LDN at bed time, 400 IU Vitamin D3

Prior medication until LDN:100 mg Imuran a day - GI wanted 150 mg, but I didn't want to destroy my liver, 1 Gram of Pentasa 4 times a day, 3 mg of Entocort 3 times a day, Librax as needed


Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 3/25/2010 7:30 PM (GMT -7)   
My GI recommends scopes once a year after you've had CD for over 10 years because the incidence of colon cancer increases at that point. I push them to 1 1/2 to 2 years because of the cost.

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 3/25/2010 9:02 PM (GMT -7)   
I get at least one-two colonoscopies per year since that is usually about how many times I get sick - I only get scopes when i am having a flare so don't know what will happen when someday I am able to go a whole year (!!) without a flare.  i wouldn't mind a scope when i am well to see the difference in pictures.

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 3/25/2010 9:39 PM (GMT -7)   
I think 12-18 months apart for me.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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