dinkeydee- a full flare for me constitutes very bloody diarrhea at least 20 times per day, liquidy/sandy in texture (sorry so graphic), pain of at least 6 out of a scale of 10, no appetite, low grade fever and just plain sick and weak.
hldwodrgs- I do not care for my Dr. and plan on replacing her soon. I need to find a good GI in the New Orleans area.
grandpato2- I found out about this supplement here on this site so I am happy to share my experience with everyone.
I only wish it will work for others as it has for me.
Crohnie for life- Are you a heavy bleeder? How long have you been taking it and what is your dose? I take 3 pills 4 times a day. I am even waking up in the night to take my pills because I want to heal completely before I stop waking myself up at night.
I will keep you all posted on my condition. Thanks for the replies!
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008
No surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions.
Been through MANY medications with terrible results.
Currently on Cimzia, Welchol (for crohns), Ambien (prn), xanax(prn), Cod Liver Oil and Feosol iron.
Organic diet has made a big difference for me.
Learning how to love life and relax.