So Sunday I went to a clinic to try to attempt to find some pain management since I'm in between primary cares right now. She didn't like that I had a 102 fever in addition to the Crohns stuff so told me to go to the ER, since my GI's partner was working in that hospital. He admits me after being in the ER for hours. And since I was too tired to argue somehow I got on Prednisone, the one thing I swore I would never go on again unless it was a life or death situation.
I got to leave yesterday, Thursday. The hospital sucked. My iv got infiltrated twice so my hand was all poofy and swollen. The first time it happened while I was waiting to be transported to my room after a chest x-ray. My hand kept on getting bigger and bigger and there was no one around to show it to. It was scary. (My right hand is still poofy because it was from yesterday but at least it went down enough that I can give a thumb's up sign again.) I find most people in hospital are usually horrible at taking blood. I hate the ones who stick you and then woosh it around while the needle's inside of you. Move on people! You're not going to get it like that! I was on an all liquid diet for most of my stay and they would give me stuff like milk that I shouldnt be having. By Wed afternoon I was finally allowed to eat food (low residue, lactose free) and they never brought me dinner! And then Thursday morning they gave me a bagel with poppyseeds! Don't they read the chart that says, "Hey this chick has crohns, she can't eat stuff like that!"
I'm scared of the Prednisone. I don't want to be all moon faced again. It's less of a dosage then when I was on it in '02 (I was on 60 now I'm on 40) but I feel like it's still going to mess with me. I just remember being really fat looking and crazy feeling on it. I know I was on it this whole time in the hospital but I guess it doesn't seem as real when you're getting it through an iv. Now that I'm going to have to take it in pill form it's real. And I don't want to. I also need to take 2 antibiotics (cipro and flagyl) and I don't even know why.
It's hard for me to focus on getting better. The day before I went to the hospital my dad sent me an email about how fat I am. So I really, really, really don't want to be on the Prenisone.
I really don't even know what I can eat. I'm afraid to eat and be in pain. And my legs are all in pain and feel really weak. I feel like on the one hand I should work out so they can get stronger but considering I can barely go from one room to another without hurting, I don't know if it's smart to get on the treadmill.
So, I guess to sum up this post...hospitals suck. Prednisone sucks. Crohn's sucks.
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year. Have been on Prednisone, Asacol, and Remicade in the past.
Currently on 100 mg of Mercaptopurine. Just got put back on Asacol and Entocort. I hate swallowing pills.