joint pain from remicade

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New Member

Date Joined Mar 2010
Total Posts : 3
   Posted 4/5/2010 10:15 PM (GMT -7)   
I had  3 remicade treatment in 2002 then went off the meds.  My DR started  a new remicade treatment about a month ago.  The IV went fine but I had a horrrible reaction about 6 days later, where I had tremendous joint pain especially in my shoulders.  It  took a five day course of steriods that allowed me to move my shoulders again but I still have pain especially if i stay still for an extended time, like sleeping.  Does anyone else have this problem and will the joint pain ever go away?

Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 4/5/2010 10:49 PM (GMT -7)   
Hi Grimmster :)

I'm sorry I cannot relate to your story, I just wanted to share with you that Remicade never gave me any joint pain.. it was coming off Prednisone that gave me HORRIFIC joint pain for about 3 months, then it went away.. I'm sure someone else here can post and give you more information that will help for your situation..

I really help you feel better soon :)
 Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
 Prior Meds:
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
 Current Meds:
Pentasa 2000mg 2x a day, Entocort 9mg daily, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep..  

Veteran Member

Date Joined Sep 2006
Total Posts : 845
   Posted 4/5/2010 11:45 PM (GMT -7)   
There are people that actually do have a side effect from Remicade and other TNF inhibitors called drug induced lupus. It has been mentioned a couple of times on the board here and is usually caused by antibodies built up in your system but can also be a delayed reaction after your first initial infusion. I had it after being on Remicade for 4 years and also on Cimzia and humira. Your doctor can add methotrexate or 6-mp in combination with the Remicade to help counteract this but you need to bring it to their attention right away before it gets worse. After stopping Remicade for a year and now being back on it, I am not having the lupus like syndrome despite not using methotrexate now. The remicade is actually helping with my Crohn's arthritis.
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