friendly advices

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Regular Member

Date Joined Jul 2009
Total Posts : 103
   Posted 4/7/2010 2:19 AM (GMT -7)   
Ever since I got sick (some 8,9 years ago) at one point or another almost everyone I know has tried to give me advice on how I should manage my disease.
Most of the advices were pure quack (bioenergy, homeopathy, DNA resequencing through theta healing ... etc).
How do you deal with people who try to "help" you like that? Do you just nod and listen (and probably ignore) or try to educate them?
For example, today I was told, by a good family friend that I will most certainly DIE in the next 10 years if I don't change the way I eat and what medicine I take.
According to him, I should be on a veggie diet and not take steroids and 6-MP even if the doctors tell me.
Now I know he's just trying to help (the best way he can smilewinkgrin ), but it really annoys me.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/7/2010 6:29 AM (GMT -7)   
I just smile and act like I am listening and then thank them for their concern, and walk away. It is annoying, I agree 100%. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Jan 2010
Total Posts : 244
   Posted 4/7/2010 6:51 AM (GMT -7)   
I know what you mean. my boy is constantly told how small and thin he is. that he should put on some weight. HE KNOWS!!! but he just smiles and lets it slide

bob b
13 year old son diagnosed at 9,
one month of pred at beginning 
2 years of immuran ineffective
SCD seems to be helping(less pain gained 3 pounds in three weeks)

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 4/7/2010 6:51 AM (GMT -7)   
Oh my so much of the time! Plus I love it when people give me tips on how to lose weight too. That way I can take care of my disease and weight problem all at the same time. I have to admit while I generally slap a smile on my face. I have also said "When did you graduated from medical school?"
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Regular Member

Date Joined Feb 2009
Total Posts : 161
   Posted 4/7/2010 10:35 AM (GMT -7)   
When my MIL and a friend of hers inform me of what I should be eating (chicken only) and tell me how much this or that helps with their diverticulitis, I just smile. They can't get out of their heads that the way Crohn's was treated 25 years ago is not the way it is treated today or that diverticulitis is not the same thing as Crohn's.

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 4/7/2010 11:59 PM (GMT -7)   
There are lots of well meaning morons in this world. I have emergency medical training thats part of my job. I have never treated a seizure patient (atleast 6 cases) without someone telling me that I need to put something in the patients mouth so they won't bite their tongue . That unforgetable piece of medical treatment went out after the 2nd world war.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 4/8/2010 4:30 PM (GMT -7)   
Ya gotta just love it eh
i get told eat eat no matter what ppl make when im invited for dinner
dang they should know by now what i dont/cant eat
they just dont listen or understand i guess

lol i actually had my daughter thinking putting a tongue depressor in mouth would help shes 17 but listens to ppl that think they know it all
GEESH ask me..
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN


Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 4/8/2010 11:25 PM (GMT -7)   
OT again. The worst first aid case I had was when I was the trainer for my 17 year old son's soccer team. My son was hit violently to the ground and when I got to him he tells me he's paralized from the waist down. What a nightmare! So I'm trying my best to be professional and continue to treat my son, hoping for the best and treating for the worst and all I can hear is some adult from the other team, critisizing what I'm doing and complaining that I shouldn't be treating this child without his parents permission. I continue doing my job and this idiots getting closer and closer and louder and louder when a parent from my team informs him that I'm trained and the childs parent and that he'd better be gone by the time I finish. (I'm 6'5" and 220lbs) I understand He left after I gave him a look that confirmed he'd better leave real soon. FYI by the time the ambulance arrived my son's paralysis was slowly leaving and by the time we got to the hospital it was totally gone.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 4/12/2010 12:19 PM (GMT -7)   
People LOVE to tell you what you "should" be doing/eating/medicine you should be taking/how their neighbor's grandson's best friend had a similar problem and you should try what he tried/etc etc.  I think people mean well but it's annoying.  And it undermines the severity of what you are actually going through.  It's your body and your pain and your Crohn's and it's not like anyone else's.  So it would be nice if people could keep their uninformed opinions to themselves but they can't so my approach is just to smile and nod and let my mind wander while they are blathering on.  It's the same when people comment on my weight.  Even before I got sick I would NEVER have the NERVE to comment on someone else's weight or appearance, except as a compliment!  Apparently this is not the case with everyone.  So there is a lot we just have to suck up and bite our tongues.
I try to only discuss my diet/illness/etc with people who "get it" but at the same time I am trying to be more open so more people understand what I go through and it's not something I keep to myself as much.  It's a fine line.  You know what they say about people and opinions. :)  Every once in a while you can learn something new from someone who knows something you didn't, so i guess it's worth it in the end, but most people will drive you nuts.  I usually just smile, nod and not say anything.  When they are done with whatever nonsense they are carrying on about I either change the subject or politely excuse myself from the situation. 
Good luck!! :)
33 yr old Female
Crohn's Colitis
DX 12/06
Currently on Remicade, Humira, 55 30 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 

Regular Member

Date Joined Sep 2006
Total Posts : 146
   Posted 4/12/2010 1:35 PM (GMT -7)   
I just love the "others" stories. about how someone your friends or family tell you about with crohns. How he/she got better by eating certain foods or drinking some kind of juices. This is 3rd party hearsay. People are always different in how they respond to medicine. I also hate how other people will come to you with a new drug to try. Or the best yet, "have you seen that crohns commercial on TV". Other people just don't understand what we go through and how we feel inside(mentally).
37 yo--Crohns since 2000,  Ileocecectomy in 2009 with post surgical wound infection. Surgery again in 2010 to correct wound inf., found MRSA and staples which never dissolved from 3/09, removed a few in. of colon.  Also, MRSA infection 2008 x 2 and 2009. Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007 and IC in 2008.  Now receiving Humira, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, and Multivits   

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