daughter's GI approves of Hookworms! Has anyone tried it?

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Regular Member

Date Joined Dec 2009
Total Posts : 44
   Posted 4/7/2010 3:48 PM (GMT -7)   
I brought my daughter to her GI today because she is flaring again. He put her back on Prednisone for now and stated that he may try her on Imuran if it happens again. Don't know much about Imuran yet except it suppresses the immune system. Anyway, I have been researching RMAT therapy and asked him about it. He said he did some research many years ago and it did not work. Then he stated that he thinks Hookworm Therapy would would be a better bet and that he has a few patients trying this. He was busy, so i couldn't ask too many questions but he said they come from Germany and cost about $1,000.00. I was so surprised that he brought this up. It sounds disgusting but I think I may do more research on it. Has anyone tried  Hookworms? Diana

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Date Joined Nov 2003
Total Posts : 7121
   Posted 4/7/2010 4:28 PM (GMT -7)   
One of our former moderators did the hookworm therapy. She had an online journal of her experience. I just used the link and AOL has permanently shutdown the personal sites. Bummer. She hasn't been around in some time so doubt she will respond to this. Her name is Keah.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

Regular Member

Date Joined Sep 2009
Total Posts : 54
   Posted 4/7/2010 6:19 PM (GMT -7)   
How old is your daughter?
Mom of a 12 year old girl diagnosed on Oct. 2007.
did 6 weeks of Total enteral nutrition with Splash E028 and Vital Jr. (also tied Peptamen) (1900 cal. a day). Eating normally for since Thanksgiving 2009... supplementing with 3 boxes of E028 Splash. Symptom free! Also on Prednisone (5 mg every other day)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: VSL#3/ Omega 3: Coromega/ Vitamin D 2000 IU daily
Warm healing wishes from the Miami beaches....

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Date Joined Sep 2005
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   Posted 4/8/2010 3:13 AM (GMT -7)   
Unfortunately, some of our best threads on this topic have disappeared with time, but I did a quick Google for you, and you might like to read these threads:


Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 4/8/2010 3:50 AM (GMT -7)   
7007 just posted a thread the other day about his journey:

Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

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   Posted 4/8/2010 4:29 AM (GMT -7)   
I am hoping the best for your daughter
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Regular Member

Date Joined Dec 2009
Total Posts : 44
   Posted 4/8/2010 5:11 AM (GMT -7)   

Thanks everyone for the responses.

My daughter is now 14 years old and was diagnosed at 11 with crohns. We are trying to do as much as possible to keep her off the strong meds, so we are trying anything alternative that cannot hurt her. Being so young, I worry about the long term effects of these meds. We had great success last year with LDN and the SCD diet. In 4 months, she gained 12 lbs and grew 4 inches. I was over the moon with joy that we found something that helped. She went almost a year without flaring. That was this past Christmas. And now 3 months later, another flare. I don't know why it didn't work this time. I know she has cheated on the diet as we went to Mexico in March, so she may have some yeast overgrowth which causes the LDN to not work. We will try again after she tapers off the Prednisone. I think I will add some Nystatin to kill off any yeast though and increase her Pentasa too. But this Hookworm therapy does interest me. I will ask the doc more questions in May when I take my daughter back for follow up. My daughter is creeped out by the thought of worms, but I am more creeped out by the scary meds.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 4/8/2010 5:36 AM (GMT -7)   
I suggets you google Helminthic therapy to see more information about using hookworms. There is also a yahoo forum run by a company. People ask questions and share their successes and failures.

It sounds like you didn't stay on SCD and LDN. Crohn's is a chronic illness that will re-appear at some point (if it ever really goes dormant). I suggest you stay on a therapy for this reason. Once damage is done, it may never completely heal and scaring, etc., can lead to more problems.

Take care.

Post Edited By Moderator (Nanners) : 4/8/2010 7:13:42 AM (GMT-6)

Regular Member

Date Joined May 2009
Total Posts : 251
   Posted 4/9/2010 9:45 PM (GMT -7)   
I have yet to hear a dr okay the hookworms.  But you should check wikipedia i found a good article on it.  Please let us know if you follow through because I am very curious and would like to try it but my dr does not approve anything that is not conventional therapy.  Good luck!
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
28 yr old female w/ crohn's colitis

Regular Member

Date Joined Dec 2009
Total Posts : 44
   Posted 4/10/2010 9:58 AM (GMT -7)   
Hi Sickofitall,
Thanks for the info. Yes, I was surprised the doc brought it up. I asked about RMAT therapy and he said he thought hookworms was a better bet.This doc does give his patients a certain amount of control because he feels people need to feel like they are doing something. He supported my daughter in taking LDN which is also alternative for crohns. At that time, he said he allowed a few patients to try the hookworm therapy but I don't think he believed it would help. This time he told us to think about it, so these patients must be doing well on it.Even though the LDN helped keep her in remission for a year, now it does not seem to be working as well. We will try it one more time before we try anything else. I have been reading the yahoo helminthic therapy chat messages and am learning about it for now. I'd rather see my daughter try the hookworm therapy that go on Remicade. I will definately let everyone know what happens. Diana

Regular Member

Date Joined Dec 2009
Total Posts : 44
   Posted 4/10/2010 10:13 AM (GMT -7)   
Hi FallColors,
I happened to read some old posts from 2008 provided by IVY6 and it seemed you were going to try the hookworm therapy. What happened? Did you try it? Please let me know. It would help in deciding what to do. Thanks Diana.

Sir Crapsalot
Regular Member

Date Joined Jan 2010
Total Posts : 24
   Posted 8/8/2010 8:16 AM (GMT -7)   
Actually, you might be better off with the combination therapy. I am using whipworms for my colitis with good results. I got them from autoimmune trerapies

Veteran Member

Date Joined Apr 2006
Total Posts : 1885
   Posted 8/8/2010 9:58 AM (GMT -7)   
Ides, I'm pretty sure Keah used the whipworm therapy, not the hookworm therapy.
Here's the published clinical trial fromt the Ovamed website:

Regular Member

Date Joined Mar 2006
Total Posts : 111
   Posted 8/10/2010 4:59 PM (GMT -7)   

Was wondering what you and your daughter ever decided to do about the hookworm therapy. I too am on LDN and working on getting the yeast out so the LDN is not working yet. I am heavily considering going to get the hookworms. My GI didn't approve it but a family doctor believes in it.
36 y/o Female
Diagnosed with CD 1993

Currently taking Asacol, B-12, Folic Acid, Probiotic, Fish Oil, LDN

Past meds: Humira, Immuran, Robinul, Flagyl, Cipro, Prednisone, Bentyl,

Veteran Member

Date Joined May 2003
Total Posts : 2481
   Posted 8/11/2010 7:09 AM (GMT -7)   
Last I heard, there was a hookworm clinic in Mexico.

Regular Member

Date Joined Dec 2009
Total Posts : 44
   Posted 8/11/2010 4:45 PM (GMT -7)   
Hi Everyone,
We were prepared to do the hookworm, got the Blood work done and filled out the questionaire for AIT. Then, she started doing really well again, maybe the LDN began working again. She is also now taking 5-(500mg)Pentasa, all at once, and that may also be why she is doing well. Before, she was taking 2-3 per day, but spaced out. Her GI said she could take up to 6 all at once, so we did. I hate changing things when she is doing well. She feels great, is holding on to her weight. She's not growing much but maybe that will kick in too.I'm afraid to rock the boat right now. Hookworm therapy may still be in her future, but not right now. Also, I am a bit worried, because I am not reading many success stories on the chat site. All the research points to good results, but why are people not talking about it. If HW was successful with my daughter, I would be telling the whole world, so they could try it and go into remission. I've read more about allergies than anything else having success with HW. I'll keep reading and learning for now and hoping I hear some good testimonials with crohns. I will keep you posted if we go for it. Diana

Veteran Member

Date Joined May 2003
Total Posts : 2481
   Posted 8/11/2010 6:03 PM (GMT -7)   
Thanks for the update and Thank God she's doing better. I agree, if it aint broke, don't fix it.
Hope she has a lifelong remission!

Take care!

New Member

Date Joined Jan 2007
Total Posts : 5
   Posted 8/23/2012 12:43 PM (GMT -7)   
hey guys, i have crohns, tried everything alternative, and some meds

i want to find someone with hookworms, and ask for some poo to step in!!!

surely i can easiy get infected, and save thousands of dollars!

anyone in europe, willing to do this for me, i live in cyprus


then i will offer free treatment to anyone, we have suffered so much, and payed so much
to big pharma and alternative therapies, we deserve a break.
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