not sure whats going on???

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Regular Member

Date Joined Jun 2009
Total Posts : 46
   Posted 4/9/2010 2:28 PM (GMT -7)   
Hello, my name is Kelly I have posted a few times on here. I have had crohns for a year now. I am 22 years old..... I have started my remicade I did the 2 4 6 week treatments but my crohns started to flare beforeI got to 8 weeks and my dr. uped it 2 6 weeks. So now I go every 6 weeks. I go May 10th for my next one. But what I am writing about is that I have been having pain under my left breast right around my ribs. It hurts when I take a deep breath... and my left shoulder is hurting. I have had a lil bit of D and feel like I gotta throw up.... Not sure what is going on just wanted to see if anyone else has ever had any thing like this and see what it could be... any advice would be great.... Thank you!
These are the meds im on:
Remicade Iv every 6 weeks.
Predisone 10 mg. 6 a day. Been on that for a year now....
Pentasa 500 mg, 8 pills a day.
Alendronate 5mg. 2 a day.
Pepcid  20mg. 2 a day.
Caltrate 500mg. 2 a day.
B-12 500mg. 2 a day.

Regular Member

Date Joined Oct 2009
Total Posts : 51
   Posted 4/9/2010 3:10 PM (GMT -7)   
sorry, cant help out. If it had been your right side it might have been you gall bladder. Only thing is it might be a referred pain from something in your bowel. If it persists then maybe you need to ask. Good Luck

Veteran Member

Date Joined Nov 2009
Total Posts : 1680
   Posted 4/9/2010 3:37 PM (GMT -7)   
Possibly chest pain with a cardiac origin. Go to the ER to be on the safe side.
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008
No surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions. 
Been through MANY medications with terrible results.
Currently on Cimzia, Welchol (for crohns), Ambien (prn), xanax(prn), Cod Liver Oil and Feosol iron.
Organic diet has made a big difference for me. 
Learning how to love life and relax. 

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 4/10/2010 12:49 AM (GMT -7)   
pmedic that was my first thought as well.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Regular Member

Date Joined Jun 2009
Total Posts : 46
   Posted 4/10/2010 4:12 AM (GMT -7)   
I went to the er and they did an ekg and said everything looked great. They said they didnt kno what was causing the pain. That it prob. is just my crohns. My gi says im having small bowel pain...... Thanks

Julia Hill
Veteran Member

Date Joined Mar 2008
Total Posts : 560
   Posted 4/10/2010 5:41 AM (GMT -7)   
I am taking Humira for my crohn's and I had the same pain about a month ago. I had a chest x-ray (lupus), ultrasound of my kidneys and pelvis (possible kidney stone). I never did find out what it was and it just went away on its own. I have had crohn's for 30 years and I have never had that pain before. In the back of my mind I have been wondering if the Humira played a role in that.

Please keep us posted.


Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 4/10/2010 6:02 AM (GMT -7)   
Hi Kelly, at 22 you may not think of heart trouble but you need to talk to your doc about it. Always rule out the serious stuff first. Also if you are having lots of trips to the bathroom you may have pulled a muscle doing the paperwork or straining , plus gut pain can radiate into places you dont expect. Talk to your doc and take care of yourself . Hope you feel better soon.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Regular Member

Date Joined Jun 2009
Total Posts : 46
   Posted 4/10/2010 7:27 AM (GMT -7)   
I have never had this pain before with my crohns..... I have had problems with my joints since I found out I had crohns and was tested for lupus about 2 months ago. I tested postive for lupus 1/80. But was told by my dr. that it was normal and nothing to worry about that I would test postive for a lot of things. I have had crohns for a year now. I was in the hospital 9 times last year. Longest stay was 18 days....I didnt have insurance at the time and couldnt afford the right treatment... Thats why I have been on pred. for so long. I have been on 60 mg. for a year now trying to come off of that now. It doesnt make me gain weight tho. I just lost a lot of weight. Im 5'1 use 2 weigh 130. now im 98 pounds. It has just been and up and down battle I feel like im never gonna see remission! But I jsut keep my head up and keep on fighting. Thanks for the replays! I hope you are all doing well!
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