I had an abscess that ruptured on its own in September which has since become a fistula. In the past, when I had an abscess, Cipro & Flagyl got rid of it, but they aren't strong enough to eliminate a fistula. The colonscopy also said my only inflammation was in the rectum and that I currently have 'atypical' Crohn's.
My GI told me that the only thing that will cure a fistula is Remicade. We've been trying to get me on Remicade since January, but my HMO won't approve it until I've exhausted oral meds.
And you just halted that very expensive and very much in demand therapy.
In doing so, you might have inadvertently made yourself immune to remicade.
I don't know if they'll let you go back on it, even if you begged.
I don't know of any other medication that will cure your fistulas the way Remicade would have.
Remicade may or may not be a 'cure that is worse than the disease', but you'll never know now because you never gave it a chance to help or hurt you.
As much as I am terrified to death of being on Remicade, I know that it is the only thing that will remove my fistula(s).
I'm tired of having a hard lump draining fluid between my anus and vagina. I'd gladly trade it in for a new symptom of my disease, whatever it may be.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah