Agree with Nanners, get a surgical opinion and perhaps a new GI...?
It's at least time to try a new drug, I would think. Humira, as you may as well go to a biological, if you can.
As far as pouches go, they are by no means the worst thing. I waited 15 years to have surgery, probably should have done that sooner, and due to surgical errors I had to get a pouch, but you know I never felt better.
Proactive is probably the better way to go and those steroids (Entocort is a milder steriod) should help you be your best advocate.
If you have family or a close friend, make sure you bring them with you to your doc apts -- you will get better service. Hate to say it, but it's true.
Hang in there,
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Lare inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.