Getting Married with Crohn's or Colitis...

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Regular Member

Date Joined May 2007
Total Posts : 76
   Posted 4/14/2010 11:56 AM (GMT -7)   
Hi Everyone!
I am supposed to be married in October 2010 and I'm completely freaked out.  In preparation for te big day, I went back to my doctor and told him I need him to fix me for just one day - I just need to be able to get throguh the ceremony without having an accident (a very common problem for me).  so they decided to do a colonoscopy, see the status of things, and then decide a battle plan...  sounded great.
So I did the test and they now say they dont know if I really have Crohn's afterall.  they think maybe I have colitis instead, or both crohn's and colitis.  I'm taking all this medication and they dont know what I have!!!  grrrr.  This has been going on for years with the back and forth diagnosis.  So they are sending me to some major specialist in manhattan to help with a final diagnosis.
But now I have lost faith that they will ever figure me out.  Worst case scenario is they cant 'fix'  me by the wedding...what did you all do to get through your big day with a flare?  I'll take any advice.  Iv'e considerd not eating for the day...but what else.  Its a 2 PM ceremony that I am going to cut to 1/2 hour cause of the Crohn's mystery disease, and then the pics, and the reception is at 6.  Thoughts?  shakehead Thanks!!
DX with UC 8 years ago/Re-Diagnosed with Crohn's 6/26/2007 /
2010 - they think I have BOTH! (???)
Canasa / 1 per day
Lialda(new) 2 per day
Rowasa / 1 per day

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 4/14/2010 12:18 PM (GMT -7)   
Congrats on your upcoming wedding! I can't even imagine the stress of worrying about having and accident on your day. That being said, you are very wise to have a game plan. Having the game plan should eliminate a lot of the stress that could contribute to you having an accident. May I suggest that you prepare yourself by taking extra underwear and some kind of diaper/maxi-pad etc. I'm sure you've thought of that already. Does immodium help you at all? If so, I would take it round the clock that day. Does prednisone help you? Would your GI be willing to put you on a short burst of it for a week or two so you could have the extra help to keep your gut calm? I might try that. You can't not eat - with all of the stress you'll possibly faint! Maybe eat light? But you've got to eat!

You could possibly have "Crohn's Colitis" - there are 5 types of Crohn's named for the places where crohn's affects your body. I have Crohn's Colitis - crohn's in the colon/large intestine. In layman's terms Colitis affects the top layer of the intestines, Crohn's affects all of the layers. So, in checking you out with a colonoscopy, they probably looked at the degree to which the inflammation affects your gut, etc. Don't be discouraged that they haven't named it. It sounds like they are on the right track in trying to help you.

How's it going with the Humira? Does it help? Try to schedule your shot a few days to a week before your ceremony to make sure that you are getting the most benefit from the med.

I really feel for you and the stress that you have to go through with this. I know it seems like it's not fair. But you will have a LOVELY wedding day! I just know it. Make sure you schedule the day to give you plenty of time to get to the bathroom and while it feels like it would be the end of the world to have to cut to the bathroom in the middle of something (like the actual ceremony) - it's ok if you have to. You can tell whomever is going to marry you and then there can be a joke about "cold feet" or whatever. You'll do great!

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 4/14/2010 1:55 PM (GMT -7)   
Wahoo! I wonder if you could get an light empire waist dress with pull cords at the bottom, so you could gather the entire dress bottom in one hand.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Regular Member

Date Joined Mar 2008
Total Posts : 221
   Posted 4/14/2010 4:29 PM (GMT -7)   
hey there!! I feel your stress!! I just got married last October and I went through the same thing! I told my dr. I need to feel great for the day of AND for a week after b/c we flew 13 hours to Hawaii and I was soo nervous to be on a plane ride that long!

He gave me prednisone for two weeks. It was great b/c the extra energy it gave me actually helped me get things done prior to the wedding and I felt good throughout the wedding day! I stayed away from all alcohol and ate safe foods for the day. Unfortuntely, the honeymoon didn't go as well...haha, but at least the wedding day went beautifully! I never had to go potty in my dress the entire night! Stress makes my Crohn's worse, so you can't stress about what will happen and just hope that things go well!

Also? My ceremony was literally 15 minutes long!! It helped! Good luck!! and congrats!
28y/o F, diagnosed with Crohn's Disease at 25 y/o , 2000 units of Vitamin D , 1500 Units of Calcium
60mg of 6-MP once daily since Feb. 2010

Regular Member

Date Joined Jan 2010
Total Posts : 37
   Posted 4/14/2010 4:49 PM (GMT -7)   
I actually just got married last September.  I know this sounds crazy but there is so much going on I swear I never thought about my Crohns one time!  I ate breakfast that morning (wedding was at 4pm) but I never really ate at the wedding.  Except cake of course :)  I was too busy dancing and catching up with everyone!!   Good Luck! 

31 year old female
diagnosed with Crohn's disease July 2006
12/09 discovered I had 2 fistulas and an abscess

Recently started Remicade 12/09 in hopes to avoid surgery

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 4/14/2010 5:31 PM (GMT -7)   
I would go with the not eating plan.

That works wonder for me but just drink lots of poweraid or stuff like that to keep you going.

And keep the dress simple so that a simple toilet trip will not become a mayor deal and so you can go quick and easy.

I would say that it does not matter what you have as long as they are treating you and the treatment is working.
My doc thinks I have UC but he treats me like I have CD. And I am not on board with hid dx I think I have CD but It does not matter. I am getting Humira and it has finally start to work so I will keep my mouth shut as long as I am getting better.

It would be great for you to meet this new doc and see what he has to say.

Good luck with your wedding.
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ ~

New Member

Date Joined Apr 2010
Total Posts : 2
   Posted 4/14/2010 6:00 PM (GMT -7)   
well first off congratulations on your wedding and sorry about having a flare so close to it but it's weird because the doctors thought that i had both crohns and colitis after my scope a couple months ago but at the end it turned out to still be crohns. my body hasn't been 100% since last November because OK first i had a flare then it was this C-dif thing (which is some kind of bad bacteria in my body) but had the same symptoms as a flare then i got the H1N1 which made my stomach have again the same symptoms then i guess i got another flare and now i'm taking a IV treatment every 2 months and the doctors are still trying to find the right medicine for me. my life is especially hard for me because i'm only a 12 year old boy and with all things im involved in its hard for me to get caught up on them. I've missed like a whole season of soccer and so far i've missed 35 days of school this year. i don't really have any advice for you since i'm only 12 sad but i wish i could give you some. but like some of these comments i'd have to say that going to the hospital and having your stomach have a break might be the best thing to do if it was me. again i'm only 12 so ya i don't know a lot about medical stuff so ya.

well hope you feel better for you're wedding again sorry i'm not much help. sad

What A Life
Regular Member

Date Joined Mar 2010
Total Posts : 116
   Posted 4/15/2010 5:15 AM (GMT -7)   
Congrats to you! I've been in plenty of weddings, but haven't found the right woman yet to plan my own lol... I can imagine how stressful it must be. Wish you the best of luck!

I'd go with the no-eating thing, but take your meds, vitamins and be sure to stay hydrated so you don't get weak in the knees!
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/15/2010 6:07 AM (GMT -7)   
Just wanted to send you good wishes for your Wedding. I too think you will be so busy you will forget all about it. Also think a short burst of Pred might be a good idea. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

New Member

Date Joined Apr 2010
Total Posts : 1
   Posted 4/15/2010 6:25 AM (GMT -7)   

Ask you doctor about prescribing and using 10% Tincture of deodorized Opium.  It works great.  Too much can make you drowsy.  0.6 ml in a shot glass of water every 4 hours may help you through your wedding and reception. I use an old 1ml syringe to measure.


Congrats on the wedding.




BTW insurance probably will not cover it.  For me this is a big quality of life med.

Post Edited (FT847) : 4/15/2010 7:29:31 AM (GMT-6)

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 4/15/2010 7:40 AM (GMT -7)   
My diagnosis is also Crohn's Colitis...even after having my colon removed, my GI still is not 100% sure it's crohns and not UC. I think that's a common thing--like others said, don't worry about it. The drugs used to treat it are still the same drugs.

As for your wedding, I'd say eat carefully in the days leading up to it, and if not eating is something you can do on the day of and you'll still be ok, then do it. Make sure you're drinking water or something. I've gone MANY a day without eating in order to be safe and I know I can do it and still just depends on the person. Are you against wearing Depends or something like that? If accidents are really common for you, that may be a safe measure. Otherwise I'd say load up on the Immodium...Have you ever tried Lomotil? I had that prescribed for me in the beginning of my diagnosis and have used it ever since.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently on:10 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention). 

Regular Member

Date Joined Feb 2010
Total Posts : 75
   Posted 4/15/2010 1:04 PM (GMT -7)   
congrats on your wedding. I have found stress good or bad gets my stomach juices going and therefore bathroom time. I would suggest a low mg of xanx. And maybe some bentyl for abdominal spasms. I would eat a lite breakfast. And maybe a boost in between about 2 to 3 hours before the wedding i would just drink water. That should give your body some time to evacuate what it needs to. Immodium is okay but i wouldnt get carried away with it cause it may make you uncomfortable. i know im so used to going and nothing really left. That when i take immodium or anything it really slows things down ,and thats one pill ,I feel really uncomfortable. I would never take predisone unless i had to. Its not a very good medicine for the side effects. ive had crohns for 31 years and it always surprises me . Again congrats I know your wedding will be fine and special. Hope some of this helps. : smilewinkgrin

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 4/15/2010 7:28 PM (GMT -7)   
I don't have any suggestions that haven't already been said....but wanted to say CONGRATS to you. I hope your special day turns out to be all you've dreamed it would be, and nothing added in that you don't want!

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Regular Member

Date Joined Jan 2005
Total Posts : 140
   Posted 4/15/2010 10:44 PM (GMT -7)   
I went through the same thing this time last year, my wedding was last September. I'd been having a lot of trouble with my Crohn's and by May I was already freaking out. I emailed my doctor and told him I wanted to postpone the wedding, he told me to relax. My husband told me the same. The best advice I got was on here: Imodium Advanced. Worked like a charm. But like another posted said, there's so much going on you'll probably forget about your gut - I did. I think it's the adrenaline that kicks in.

Please don't skip breakfast, you're going to need your energy. Maybe eat a few snacks throughout the morning instead of a huge meal? At my reception I didn't have time to eat much, too many people to see, too many songs to dance to!

Congratulations! It's going to go great, you'll see.
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