Thanks for the replies!
Sami used to be on Remicade and methotexrate, but because her disease was so far gone, Remicade didn't work and surgery was our only option. She had been on prednisone for over a year too. I *think* that because her disease went undiagnosed for years (starting showing symptoms at 4, diagnosed at 10) is why it was so bad. The orginal diagnosing Dr said, it appears to her, that Sami has had it for quite awhile considering the damage she saw during the scopes. But we had been told by various dr's that it was all in her head.
Sorry I digress. She never had any pancreas issues until her total colectomy and she ended up with pancreatitis. I'm thinking that a combination of that and the meds are damaging the pancreas. I was told by a friend that once you start having pancreas issues, that you will have issues off and on for life. I don't know how true that is.
Mom to 5 special children
14 yr old- GAD, PTSD, ODD, LD
13 yr old- Crohn's Disease-total Colectomy Feb 09, PTSD, Dystymia, JRA, Asthma, Osteoporotic
11 yr old- Globally Developmentally Delayed, Low Cognitive Functioning, PTSD
10 yr old- Epilepsy, Unspecified Social/Emotional Disorder, PTSD, LD
3 yr old -Bright and Happy