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Veteran Member

Date Joined Jan 2010
Total Posts : 794
   Posted 4/17/2010 2:27 AM (GMT -7)   
Son had a check up two days ago. Is symptom free and now weighing in at 114lb(ideally would like him to gain another 5 lb but I am sure that will come) Asked about B12 injections as it was mentioned previously-can't recall what exactly it is they measure in the blood but initially his levels were below 100 and are now over 400 so no need for these injections ! He can also stop with the pentasa, vitamin D and entecort although is to remain on his azathioprine (two tablets per day better than nine) and no more appointments with the gastroenterologist for 4 months (obviously subject to no deterioration)
Hopefully dietician will sign him off at next appointment and then we will have to see what the endocrinologist has to say (appointment in June after exams)
So, things feel good right now but I am aware that things can change for the worse fairly quickly but hopefully son will have a period of 'normality'

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 4/17/2010 3:37 AM (GMT -7)   
so so soooo happy for your son n you
keep us posted
you are doing great with him thats evident with this news
nice to hv good news here eh
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

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MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN


Regular Member

Date Joined Mar 2010
Total Posts : 303
   Posted 4/17/2010 6:40 AM (GMT -7)   
Congratulations! I know you are so happy and relieved that your baby has started to feel better. I will pray for a long remission.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/17/2010 7:53 AM (GMT -7)   
Yeah glad to hear he is feeling better!! One thing I would like to say though is I would continue with the Vitamin D3. This is a vitamin that really helps the immune system, and helps our bones. Something that every Crohnie really needs in their med mix. They are finding even healthy people are really low on this vitamin, so my personal opinion is I would keep him on this vitamin. Good luck and here's to a long remission. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jan 2010
Total Posts : 794
   Posted 4/17/2010 10:27 AM (GMT -7)   
Thanks Lynn, although I doubt very much if it is anything that I have done barring  nagging him about taking tablets.
Tewcute yes I am somewhat relieved although I am fully aware that this is not going to be the end of it but I can always live in hope that the disease leaves him alone for a while.
Thanks for the tip Nanners, he is to have his regular blood screening on Tuesday due to the azathioprine and his consultant has asked for the vitamin D levels to be checked but even if they are ok and he is not  'officially' prescribed anymore I think it may be wise to buy them for him.
On another note. due to the large number of sufferers in the county where I live, the national uk  charity that  helps sufferers has now started a new group here which I have got involved with although it is still very early days in the formation.
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