So, a bit of background. I'm currently 20 years old, been diagnosed with Crohn's disease since I was 18, and have experienced NO relief since being diagnosed. When I was first diagnosed, it was termed mild-moderate. I was put on Asacol for awhile, then Entocort EC, then Prednisone, then Azathioprine (Imuran), then Humira which was the first thing that worked, however it only worked for about
a week, and then I stopped responding. Got another colonoscopy, and my diagnosis was changed to severe Crohn's disease, after finding extensive damage, and many ulcers. My Crohn's is throughout my entire colon, and the ileum, and not much in the small intestine. I then tried Methotrexate and Remicade, which didn't work. I then tried an experimental treatment to treat MAP using antibiotics used for tuberculosis, as some believe Crohn's disease is caused by a MAP infection. Didn't work. I've started getting severe lower back pain in addition to all of my Crohn's symptoms, which include cramping and stomach pain, bloating, gas, diarrhea for every bowel movement which tends to be 6-8 times a day, blood present about
1/4 of the time, fatigue, and nausea (especially in the morning).
So, after all of that not working, I'm now seeing a naturopath who's recommended the Specific Carbohydrate Diet, and am not on any medication, other than supplements. I've been on it about
4-5 weeks, and have not gotten better, at all. I've followed it pretty religiously, however I moved on passed the intro diet probably sooner than I should have, since I added in some cooked vegetables while I was still having diarrhea, and occasionally eat some raw fruit. I'm experiencing the same symptoms as listed above, which I've been having for two years now. So far, the only benefit I've found is that I've lost some weight (which is good for me, because I'm one of the weird people that have gained weight since being diagnosed).
So, my question is. What should I do? Should I re-start the intro diet, and make sure not to move on until the symptoms have gone? How long could that be? Am I just one of the few people the diet doesn't work for, just like I'm one of the few people that all the medications don't work for? And if that's the case, what's left for me to do? I'm a little scared, and weary of the drug trials my GI doctor has wanted me to try, is there anything else people have done to get better?
Starting to lose hope for ever feeling better again. :( Any advice, or help will be greatly appreciated. I really want to start feeling like a young adult again!
Post Edited (Red Oleander) : 4/18/2010 6:23:45 PM (GMT-6)