Had my colonoscopy today

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Elite Member

Date Joined Jan 2010
Total Posts : 10095
   Posted 4/19/2010 5:24 PM (GMT -7)   
And I can safely say it was the most gruelling colonoscopy I've had to date. Firstly, the prepping took it out of me more than normal - both literally and metaphorically. And secondly, the procedure itself - oh dear lord. I was sedated and hence only remember a few minutes of it, but those few minutes were among some of the most excruciatingly painful in my life. I was crying out in pain and ended up almost begging for a painkiller. I'm not sure what happened exactly, but the nurses were reassuring me and somebody did give me something, I think - not enough, but enough to make it through to the end. Never did I feel such relief at something being over.

Before I scare anybody off from getting a colonoscopy I've had three other colonoscopies and none of them were like this one. For the first two I didn't feel a thing; the third one was more uncomfortable but nothing even remotely approaching today. However, it really isn't the norm to feel bad pain during a colonoscopy.

Anyway, it seems like I don't have any strictures in my colon apparently, but it would appear to be well and truly fried. Crohn's colitis throughout, with a "normal" anus and rectum. (Nice to know they're normal <_<)

The comments in my report says: "Extensive colitic changes with fissuring and ulcerations with membernous [sic?] exudate. Changes are very marked in the right side, less marked in the left side with sparing of rectum."

A nurse explained to me that exudate referred to liquid exuding from the membranes, that's all I can tell you about that bit. And fissuring: I don't get that bit either. That is, I know what fissures are, but I thought they only happened in the anus...

The nurses who dealt with me were lovely and, almost for the first time in 11 years of this disease, I felt like they seemed actually concerned about my welfare. Even the surgeon who did my colonoscopy seemed nice. He said I was very thin - too thin. He said something about surgery, but I must have still been amnesiac from the sedative, as I don't remember it. Time will tell, I guess. It'll take two weeks for the biopsies from the colonoscopies to be tested, but the nurses said they would try to fast-track it. Once the biopsies have been tested, I'll see one of the GIs/surgeons.

Oh yes. The colonsocopy only went as far as the caecum, so I don't know what the terminal ileum is like. Found that a bit odd, but nobody said anything about being physically unable to reach the TI; maybe by that point I was crying out too much with pain and they decided it wasn't worth going on... :-/

So... I'm glad something is being done at long last. I don't consider my Crohn's to be as bad as most on here, but it has been grating heavily on me for about a year now, all the same. Remicade, surgery... whatever, I'll probably agree straight away at this point.

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 4/19/2010 5:33 PM (GMT -7)   
I hadn't woken up in any of my colonoscopies until the last one...it was horrific. Next time I'll just ask if they can give a little more meds to ensure I don't wake up like the last time. Sorry you had to experience that. I remember waking up and putting my hand to my belly and saying ouch! It really did hurt..and apparently she was doing a biopsy exactly at the moment I woke up. My tolerance to meds is high, so I attribute it to that.

Sorry to hear that things didn't look good. Hopefully this means they'll pull out the big guns and get you well soon. Sometimes though, it's just nice to feel like you're validated in what you've been going through. It's not good to get good news, but it explains why you haven't been feeling well.

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Elite Member

Date Joined Jan 2010
Total Posts : 10095
   Posted 4/19/2010 6:01 PM (GMT -7)   
NHS hospitals seem reluctant to give you anything stronger than paracetamol - and codeine, if you're lucky. That said, when there's no pain I quite enjoy being awake and seeing the insides of my bowels. This time, though, I barely saw my bowels for longer than 5 seconds. Think I fell asleep after that, or I might have been awake and just forgotten it. The pain in my case today must have been 8 or 9 out of 10 - I really was just short of screaming for them to stop it was that bad. At the time, of course, it felt like it went on forever but I doubt it was more than a few minutes in reality.

I can't say I'm surprised by the results - this just seems an almost inevitable progression of Crohn's. It started off mild (in both the small and large bowel I found out for the first time today), and over the following 11 years has simply got steadily worse without let-up. On the other hand, I don't seem to get fistulas or strictures, nor do I get flare-ups so bad that I collapse and end up in hospital. In its own quiet, slow way this disease is freaking remorseless, and I occasionally fear where I will be after 25 years of it - no good thinking like that, though.

Anyway... before this post gets even longer, I'll stop typing. Thanks bar77 :p
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