I do realise this is a very long post to read, so all of your input is greatly appreciated.
I've been on Humira since February 2007, so that would be a little over three years. The first couple years were generally awesome: 90% free of Crohn's symptoms and no noticeable side effects from the Humira except for the occaisonal fatigue and nausea. In the past year, however, things have been very different. I've been getting sick and STAYING sick for much longer. Just this past November (2009), I contracted a nasty upper respiratory infection, accompanied by fever, nasal congestion, fatigue, chills, soreness, and everything else that a virus would cause. While the fever has long since disappeared, the infection symptoms have remained.
Here's the huge problem: I've literally been sick ever since then, with the same symptoms (except for the fever). I've contacted my gastroenterologist numerous times, and every time his exact words are, "I really don't think it's the Humira causing this, you shouldn't stop it". As I kept being persistent with him, he referred me to an infectious disease doctor, whom after numerous visits came to the conclusion that I should stop the Humira. When checking back with my gastroenterologist to confirm stopping the Humira, he still insists that I stay on it!
The only medicines I'm taking are Humira and Pentasa. Numerous blood counts in the past 6 months have all had the same results: low WBC, low platelets, & low testosterone (It's 218 and I'm 23 years old). I'm really sick of feeling sick all the time. Literally every morning I wake up with a sore throat, fuzzy head, cotton mouth, fast heartbeat, and just general horrible feeling. It fades in and out throughout the day, but there's definitely something wrong. I've had to drop my spring 2010 college semester because of this, and my work and social life is horribly suffering. My girlfriend always thinks I'm lying to her about
As of now I'm in between Humira injections. Can anyone suggest some steps I can take to figure out what is wrong with me (ie. find a different doctor, go against doctors orders and stop Humira, just give up on life, etc.)
Diagnosed with Crohn's disease February 2007, currently on Humira bi-weekly and Pentasa 1000mg 2x daily
Post Edited (Mike686) : 4/21/2010 6:14:32 PM (GMT-6)