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Regular Member

Date Joined Feb 2008
Total Posts : 165
   Posted 4/24/2010 7:53 PM (GMT -7)   
Hello, I have not been on for awhile. I have been reading thru the post though. I have been hanging over on the Kidney Disease forum as I had a 6.5mm stone I was trying to pass on my own but had to have surgery on it.
I have been on Pentase for years and have never felt in remission. My pain has always been on the right now it is on the left as well. I know it is not my kidney. Today my fever is 101 again and I don't hardly have the engery to keep my hands on the keyboard.
I have been put on Topral XL 25mg at HS, my heart rate runs 120-170. I am told it from my anemia. I had a iron infusion that did nothing except give me joint/bone pain in my large bones.
My Dr wants to put me on "the big guns" he calls them. Remecade or Humiara. BUT I have dawson's fingers on my brain (a sign of MS). If I go on these big guns will they bring out the MS? 
And I also have cramps so bad in the AM during my many BM"S that I throw up. Not a pretty sight. My poor familky gets so upset.
Also I never really knew how much pain I was in until I took pain pills for my kidney stone and felt almost normal. I was so excited.
Sorry to ramble on but you all are so helpful on here. Thanks for your time.

 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    

Post Edited (Not2Spunky) : 4/24/2010 8:56:28 PM (GMT-6)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/25/2010 7:50 AM (GMT -7)   
Have you asked on the MS forum about the Remicade/Humira? I know alot of folks on this forum have had success with these meds. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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