crohn's and gyno problems

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Regular Member

Date Joined Jan 2010
Total Posts : 257
   Posted 4/25/2010 9:38 PM (GMT -7)   
I have crohn's (recently mildly flaring up - causing fevers, mild D.) Now back on Pentasa. At the same time as the flare up was having some spotting and got an ultrasound to discover 21 cysts on my rt ovary and a 7.5cm fibroid (I was diagnosed with PCOS years ago). Going to a Gyno in May. Feeling frustrated b/c the treatment for PCOS (metformin) can cause D. I'm feeling like I might need to pick which thing to treat - C's or PCOS. Can anyone relate? Is anyone taking metformin and pentasa?

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/26/2010 8:22 AM (GMT -7)   
I unfortunately don't have any answers for you but I do believe we have members who have had these issues before. Hopefully, by bumping up your post more will respond.

I did have alot of misery with my monthly though. I was miserable 3 weeks out of everymonth and eventually had a hysterectomy at 36 when I was done having my kids because the fibroids gave me so much grief. Good luck to you!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 4/26/2010 3:53 PM (GMT -7)   
I had severe issues had to have full hysterectomy right after last one born ..this led to my pyoderma gangrenosum n other issues...hope you get more answer now that nanners bumped it up for you

..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

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Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 4/26/2010 7:14 PM (GMT -7)   
A low carb diet can help a lot with PCOS. I went down to less than 100 g carbs/day getting my carbs from low glycemic index vegetables and fruit. I basically cut grains out of my diet. I eat every few hours to keep my blood sugar level. All my meals and snacks include protein, healthy fats, and a bit of carbs.

My hormones evened out and many of the PCOS symptoms disappeared. The 50 lb weight loss helped but I had had PCOS symptoms way before the weight gain.

It's difficult at first but it might be worth a shot.

Regular Member

Date Joined Jan 2010
Total Posts : 257
   Posted 4/26/2010 9:18 PM (GMT -7)   
Thanks! How did the low carb diet do with your crohns?

Veteran Member

Date Joined May 2007
Total Posts : 1284
   Posted 4/27/2010 9:43 AM (GMT -7)   
I was never diagnosed with PCOS, but I do have a tendency to get cysts on my ovaries... and once, when they were going to remove a mass on my right ovary, they had to take out the entire ovary (and the phillopian tube) because the mass had gotten infected and had enveloped my ovary...

I never had these sorts of problems until after I developed Crohn's disease, so I do have to wonder if there is some kind of connection...

(Oh... Another thing... my periods really suck now... Used to periods would be a breeze for me. There'd be no pain, no cramping, they'd be normal, no emotional issues.... Now, it's like I have really bad cramps, emotional issues, and heavy periods...)...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

Regular Member

Date Joined Jan 2010
Total Posts : 257
   Posted 4/27/2010 9:53 AM (GMT -7)   
I hear you on that one. I have never had easy periods, but they seem to have gotten worse (long, really bad cramps, a lot of bleeding) I also tend to get more diarrhea when I have my period. Also, my cramps are so bad that the only thing that helps is ibuprofen, which, of course, is really bad for crohns. I also wonder if other women have made similar connections?

New Member

Date Joined Apr 2010
Total Posts : 7
   Posted 4/27/2010 1:23 PM (GMT -7)   
I suffer from Edometriosis and Crohns and my periods are really bad, to the point that I've been sent home from work today, AGAIN! I had severe cramps and can't stay off the toilet. I'm trying for a baby too, have been for a year. My Consultant's not interested in the slightest to be honest, dont think men really get it! All I can recommend is paracetamol and rest.

Take care xx

Regular Member

Date Joined Mar 2010
Total Posts : 186
   Posted 4/27/2010 1:30 PM (GMT -7)   
Oh Celey- you sound just like me!  I had the exact same thing happen to my right ovary and tube- so now I only have 1 ovary and 1 tube left... and I pray that I can still have kids!  They found another mass on my remaining ovary in Dec 09 and I just found out yesterday my CA125 ( cancer marker) is elevated, so I am in panic mode that something else is going on.  I see the gyn oncologist next week.  But like you I never had female issues until I started having UC/Crohns issues.  It just plain sucks!  My periods used to be maybe 3 days, very light and totally painless... now they are 7-10 days, extremely heavy and the pain is unreal.  GRRRR!!!  So I honestly beleive there is a connection between CD and gyn issues.
Ah...thanks for letting me vent.  I am SO VERY nervous about my CA125:(
Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa,
99- multiple failed remicade treatments, more hosptial stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis and almost didn't make it.
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 4/27/2010 1:38 PM (GMT -7)   
How were you guys dx with PCOS? Was it a CT scan? My GI is going to order a CT if my next flex (in a couple months) doesn't show a clear reason for the pain I feel daily. I've not had a period in years and years but not menopausal, last time I was checked. My pain is in the pelvic region. I went through infertility treatments to have my girl (12.5 years ago). Just wondering...
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09

Regular Member

Date Joined Jan 2010
Total Posts : 257
   Posted 4/27/2010 1:43 PM (GMT -7)   
I was diagnosed with PCOS through an ultrasound and hormone tests (as well as semi-irregular periods)...

Veteran Member

Date Joined May 2007
Total Posts : 1284
   Posted 4/27/2010 3:05 PM (GMT -7)   
If you still have your one ovary left, you should still be able to have kids... I think its something you should probably seriously think over, though... I've heard of some people with Crohn's disease that have had a real difficult time with pregnancies... and I've read that Crohn's disease patients that are pregnant are generally considered to be high-risk pregnancies...

I mean... Some manage it okay enough...

For me, though... It's just not worth the risk... *I was always unsure about having kids, anyway... Crohn's has pretty much cemented the deal for me*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

Regular Member

Date Joined Apr 2010
Total Posts : 171
   Posted 4/27/2010 7:09 PM (GMT -7)   
Before I was diagnosed with Crohn's, I had lots of female problems. Cysts and tumors on my ovaries, dysplasia of the cervix, etc.
This was about 8-10 years ago. It seemed to go away for a while.

Here lately I've been having some more problems, really painful period cramps, pain when having sex etc. I went to the gyno a couple months ago and she couldn't find anything :( she said it could just be a side effect of the Crohns.

I'm gonna sound silly.. but could someone fill me in... what is PCOS?
26 y/o female from Kentucky.
Diagnosed with Crohn's in 2004. Colon resection in 2004
Had symptoms since about 2002.
Not currently on any medication. On Pentasa and Entocort in the past, with no results.
*we're all okay until the day we're not. the surface shines, while the inside rots*

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