Welcome to Healingwell!
This is a great web-site! I have made so many dear friends here! I was dx with Crohns in 05' but I think I had it for some time before....ended up having complete blockage! Anyway, this website is a comfortable/confidential place to come and talk about ANYTHING...which is super, especially if you are home alot.
I couldn't have wrote it better (what MikeB said!!!) he has a way with words:)
I agree that taking your med's prescribed to you by your Gastro Dr. in combination of diet. You'll become good friends with your Gastro Doc..at least I am cuz' I see them so much!
I was prescribed pred..just like you and then Imuran and Asacol together..then just Imuran over a 1 1/2 year time period. After a 1 1/2 years of this combo...I needed a resection to remove the infected area and it was the best thing I ever did so far. Now, on Imuran and haven't had a big flare since. I do however have some complications of the area removed...extra D n' stuff! but it is still better than it was. WAY BETTER!! There are up and down days... with any Auto-Immune disease. You will learn to understand what does or doesn't work...and it will all become second nature. truly!
I would sugest keeping a food diary. REALLY helps... to look back on it. Also, it is super normal to feel shock! I couldn't even write on this website for a year! I just would read and get freaked out and go into denial...haha..but in the long run I couldn't deny that all these people are my "peeps"
"Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!