Posted 4/30/2010 7:05 AM (GMT -7)
As do you Charlee,
Hey, sometimes object lessons work. For those you really want to understand, as them about when they were most sick, or if they've ever had stomach flue or food poisoning. Tell them it's like that, but worse, and a flare doesn't end in week, but can last much longer -- so far for you it's been a year, and your not done yet.
Put that one in your back pocket, it will come in handy
I've yet to meet any one with a chronic illness who doesn't bottom out emotionally at some point, it's a hard adjustment. Life goes on, and we fear it goes on without us, and the chitty party is some parts do, but not all. The trick for me was to alter my thinking from either-or, to both-and. Illness and Life, for all that it brings.
I don't know about others, but living in the moment helps me, granted the moments in the can, or lying in bed, or, or... do suck. But there are also the moments when your husband comes to hold you, your kids make you laugh, or proud, or yell (it is their job, right?). There's the first snow and the first bud, a rainbow surprise, a good book, flick, or friend who comes to visit.
I nourish myself in as many ways as I can, since food don't always do it.
Your very right, it takes some time to figure yourself out in this new context, and it's hard to explain to others when you've not figured it out for yourself yet.
And hey, with IBD, and any big change, there are no stupid questions, ok?
You provided a service by starting this thread, nearly 300 people have read it so far, not because it is a stupid question, but on the contrary, it's a very good question regarding a situation all of us experience.