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Regular Member

Date Joined Apr 2006
Total Posts : 347
   Posted 5/1/2010 4:24 PM (GMT -7)   
I am thinking of applying for disability for my crohns, I might be jumping the gun but heres my situation, my crohns has been relatively mild since I WAS diagnosed, no surgeries as of yet,
only medication to this point had been asacol, had 1 flare in 2008 that required about 2 wks of
pred, but since april the 13 th i have been in a flare, i am self employed, with a big inventory, i have had to shut my store, to go to the drs., i cant seem to function. with pred and flygl i am on now,
i do not have family or staff to watch my store, i am 60 yrs old.
can someone tell me what chance i might have obtaining disability through soc sec.
I know this flare might pass, but we all know they come and go, and i might be better off
liquidating now before my disease progresses worse.
thanx for listening any advise appreciated
still can get bowels moving

New Member

Date Joined Apr 2010
Total Posts : 2
   Posted 5/1/2010 9:47 PM (GMT -7)   
Hi Tigerprawn, I think you would get disability, I get it for my UC, your doctor fills in a form from Social Security, then I had to see their psychologist for him to agree that I couldn't work. But be warned, its not much, you can earn a bit, but again not much before they start clawing it back. Heather

Regular Member

Date Joined Apr 2006
Total Posts : 347
   Posted 5/2/2010 3:15 AM (GMT -7)   
thanx, for everyones input, I think i need to start now, since it could be years, and as i understand it i will get more on disability then i would retirement soc security.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/2/2010 8:48 AM (GMT -7)   
I will tell you that its VERY hard to get and you have to be pretty sick before they finally approve you. I have had this disease for almost 35 years, had 2 resections and about 8-9 other surgeries, soon will be having to have another, a total knee replacement, with another to follow in a few years. With all that, I do not feel that I would be successful in being able to get disability. By the way I am 52 years old. The ones I have seen get it seem to be REALLY sick. Whatever you do you will need to have your doctors 100% on board and have them provide any and all backup materials. I also heard you have more success if you have an attorney on board. I wish you luck in your attempts.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Apr 2006
Total Posts : 347
   Posted 5/2/2010 10:23 PM (GMT -7)   
I called soc security, and had my statement it showed on disability i would be eligible for more than
what i would receive if i just retired, the lady said when i reach retirement age i will receive the
higher amount, i verified that.
I realize what your saying about not reaching max useage of all available drugs, but i have to look for the future, and since applying for disability is a long process i am laying the ground work,
i appreciate your advice.
thanx tiger

Veteran Member

Date Joined Jul 2005
Total Posts : 669
   Posted 5/3/2010 6:30 AM (GMT -7)   
Hi Tiger,

Just this morning I received my first SSDI payment. I got it on the first try without an attorney. Have to say my age probably had a lot to do with it. I'm 58, tried Remicade once seven years ago, and am on Asacol. I have not had any surgeries related to Crohn's. I did wait almost a full year, but I will receive retro (minus 5 months) from the date I became disabled.

My primary doc knew I could no longer work due to Crohn's, degenerative disk disease and mild depression...and stated such on a form she filled out that I included with the forms I sent in. I was awarded SSDI due to malnutrition and being steadily underweight for so long.

I suggest you file yesterday and stop working if you are really struggling. Try not to rack up a lot of debt while you are waiting. My mother supported me for the year on her social security. It was tough going, but now I can, thankfully, pay her back.

Google "disability secrets" and you will find a web site written by a former disability claims examiner. It is an excellent site and explains everything you need to know and do. I had inadvertently followed a lot of the suggestions before I ever saw the site. No kidding, read the whole site.

Good Luck. I wish you the best!

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 5/3/2010 9:24 AM (GMT -7)   
Squattie...I am curious...was it the .com or the .org site that you went on that helped you out? I am in the process of doing this myself...I should have done this awhile ago, but applying for me, has seemed like giving in...I have a MAJOR psychological block, and I am lucky to have a good husband, but, he is working way to hard, and because of terror of losing health insurance, cannot really leave his job for a better one, etc...this would provide a safety net of sorts...and yes, the debts are starting to pile up. shakehead

Short of selling my soul to the devil, I want to go back to work (been out of work about three years, actually since joining this site) and would do almost anything to do so...but every time I seem to get better, I get another curve ball...
"The earth laughs in flowers"

Veteran Member

Date Joined Jul 2005
Total Posts : 669
   Posted 5/3/2010 12:35 PM (GMT -7)   
Becoming.....it's the dot com. Really useful stuff.

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