Um my old land lord is kicking me out of the UC forum (no, not really) and I need a new place. I'll just re-use the intro I did there if that's OK. I got my news this afternoon at work from my GI. I did the pill cam 10 days ago and that was the last piece of the puzzle for him, although he was pretty sure all along.
Anyways, Hello all, here is my intro.
My name is Mike, 43, fairly recently diagnosed (still not completely sure what is going on, UC or Crohns).
I have learned a lot reading this forum, thank you.
I have the tendency to use the word a@@ a lot and have meant no offense, but saying I was having a bit of a rough time never seemed to convey how bad things are/have been as compared to saying something is kicking my a@@.
I have learned that there are a wide variety of symptoms to this. I try not to say much because of my ignorance/learning curve. As I understand it, a flare is when you have active inflammation. Most have daily symptoms that really indicate, "hey, my system is jacked up", but I don't. I only know things are bad, as they have been since last August, when I seem to have what I call an "episode". As near as I can tell from learning the terminology, it would be extreme urgency and some of the most painful cramping I could ever imagine. I got stung by a bark scorpion a couple weeks ago (I live in Arizona) and realized I would rather deal with that over my unpredictable episodes. I get severe pain in my gut, it kicks my butt (literally and figuratively) for a couple hours, wipes me out, leaves me weak and makes me worry about every little thing I eat for the next couple days. And more and more recently is lasts up to 3-4 days before I settle down. Looking back I realize I have been suffering for the last 15 years or so, just never severly enough long enough to get to a doc to check it out.
I can entirely sympathize/empathize with those who are suffering more than I. I realize this is not a contest of who has it worse. I am guessing I am catching this early enough that I have not become fully flared and completely symptomatic, just guessing. I also completely understand and relate to the frustration voiced by those who have the well meaning friends and family. I was completely floored by a dear friend whom I thought really understood when she said that she thought doctors were just calling this UC and an auto immune disease to just push pills and not get people in today's society to eat healthier.
As for those whom I recently read were going through spousal/partner problems. My $.02 is that if they are blaming the illness for their unhappiness in the relationship, they weren't good partners anyways. As the sufferer in my relationships, I wish those around me, including the wife, would just shut the heck up some days. I am hurting, there is nothing I can do, there is nothing you can do, so while I am hurting the most is NOT the time to offer the "try this" advice.
Anyways, I just finally made the time to introduce myself. At least those of you who read might have a bit of understanding of where I am coming from since I have not posted here that much.
P.S. I had to leave myself a note to do this, same as the one that said look for a forum on UC, because my short term memory seems to have gotten so bad. Even worse now with the Entocort. But I am getting longer time frames between episodes.
If my terminolgy, guessing or thinking is incorrect, Please let me know and please also know I NEVER mean to offend. I am a smart ass a lot but am trying not to be here especially since I don't really "know" anyone here yet.
So, nice to meet you all!