Does anyone else get edema?

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Regular Member

Date Joined Sep 2007
Total Posts : 44
   Posted 5/4/2010 8:11 AM (GMT -7)   
I have had Crohn's colitis for 3 years now and every month or so I get edema in my feet i.e. very swollen feet. This never happened to me before I was diagnosed with Crohn's and I wondered if it happens to anyone else. It was really bad when I was on prednisone, but I stopped taking prednisone about 2.5 years ago. Any feedback or stories would be really helpful. I wore uncomfortable shoes yesterday and now my left foot is so swollen and painful that I can hardly walk. Thank you in advance!
Female, 30. Diagnosed August 2007 with Crohn's Colitis. Asacol 400 mg 12 x day. Canasa, Cortifoam, just finished Prednisone (tapered from 60 mg). Orthotricyclin Lo, Calcium, Trinity (probiotics), and multivitamin.

Regular Member

Date Joined Mar 2010
Total Posts : 186
   Posted 5/4/2010 11:05 AM (GMT -7)   

I get really bad swelling in my hands and fingers. Have you been tested for RA? I saw my family dr last week for some cold problems and I told him about how bad the swelling has been in my hands and he decided to test me for RA. Since it is also a auto-immune disease like Crohns sometimes they can go hand in hand. So I am waiting to hear back from that blood work. In the meantime, when they swell the hurt- and hurt bad! I take tylenol and sometimes have to take Norco for them. Not much help... but wanted you to know you were not alone.
Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck

Regular Member

Date Joined Sep 2007
Total Posts : 44
   Posted 5/4/2010 12:24 PM (GMT -7)   
Thanks so much. That is helpful. I haven't been tested for RA, but I'll definitely ask my doctor about it.
Female, 33. Diagnosed August 2007 with Crohn's Colitis. Asacol 400 mg 6 x day, Orthotricyclin Lo, Calcium, and multivitamin.

Regular Member

Date Joined Dec 2008
Total Posts : 73
   Posted 5/4/2010 1:24 PM (GMT -7)   
My ankles and feet swell. Like you, this disease is fairly new to me and I never had swelling before. There is maybe one week out of every month that they don't swell. Strange. I don't experience any pain with the swelling but it tingles like crazy. When I get home from work I have shoe imprints in my feet that stick around until I can prop my legs up for awhile ~ then there is some improvement.
Not sure what it's all about but I'm right there with ya!!
38 y.o. F. Diagnosed with Crohn's in 2009.
Never had symptoms until after my daughter was born in 2006.
Currently taking probiotics and digestive enzymes.
Entocort on standby in the event of a flare.

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 5/5/2010 12:11 AM (GMT -7)   
Ok someting new to talk about! Yah hoo! I don't have RA. Once in awhile at night my feet feel hot not warm, hot. When I look at them they're red or even kinda purplish. Strange thing is my feet pulses are equal so it's not lack of blood. I'm not diabetic either. Happens about once a month only at night. I do suffer from crohns arthritis, even with Remicade it can be bad, but nothing like it was before remicade. I somehow think these 2 conditions are somehow related. I've never asked the Dr. about it cause it happens so rarely. Edema? I'm not sure but the next time I'll check skin tension and compare sizes to see.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/5/2010 6:58 AM (GMT -7)   
I get the swelling in my hands alot. This morning they were really swollen and when I was washing my hands the back of them were SOOO tender. It takes awhile after I have woken up for them to go down. Ouchy!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Sep 2007
Total Posts : 44
   Posted 5/6/2010 9:09 PM (GMT -7)   
Thank you so much for your responses. It's really great to be able to discuss these things with people who understand.
Female, 33. Diagnosed August 2007 with Crohn's Colitis. Asacol 400 mg 6 x day, Orthotricyclin Lo, Calcium, and multivitamin.

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