Did I say normality!!

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Veteran Member

Date Joined Jan 2010
Total Posts : 794
   Posted 5/5/2010 1:23 AM (GMT -7)   
I guess I spoke too soon mad . Iron levels  now falling from 400 down to under 200 and blood tests indicate ds is 1/2 a marker off being in a full flare.
Hate the fact that it appears he has gone two steps forward and one back in such a short space of time, guess it is just another round in the big fight(if only it were like a boxing ring and you knew that when you got to round 12(or is it 15?) the fight would be over. LOL... and even better you would be awarded a huge cash prize for being the 'winner'/taking part smilewinkgrin

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/5/2010 6:43 AM (GMT -7)   
When you say Iron levels do you mean Ferritin? The reason I ask is my last Ferritin (Iron stores) was 176 and from what I understand that is normal/good.

Sorry to here your son is flaring again. What meds is he on? Probably time to try another maintainence med if the one he is on is not working or maybe he hasn't been on the one he is taking long enough? Some meds can take 4-6 months to reach full efficacy. Hope things quiet down for him soon.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jan 2010
Total Posts : 794
   Posted 5/5/2010 10:29 AM (GMT -7)   
Hi Nanners,
Yes I think it is the ferritin although must admit I still get confused with all the names and tests! From what I could gather around 200 is good(normal) Initially(on diagnosis) it was under a 100, massive improvement to 400 and now declining again(just wondering if the enteral nutrition pushed it up to such a good level?
It was just the azathioprine he is on now,but have spoken to the IBD nurse again today and have decided to restart the pentasa too (believe it was you that mentioned him staying on it a few weeks back when I said that gastro had taken him off everything barring the azath-you were right :)) I guess coming off them and not being on the other for 3 months yet has had a negative affect.
In addition  to usual blood tests (liver/kidney etc) he had an ESR done which has picked up inflammation activity rising.
Ho hum, onwards we go. 
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