Newbie Crohn's . . . I think

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Regular Member

Date Joined May 2010
Total Posts : 266
   Posted 5/5/2010 6:32 PM (GMT -7)   
Hi everyone, I have stumbled on this web site and am learning a lot amidst the tears and angst. So-my history is kinda weird by have had lower rt quadrant pain for 1 1/2 years, exploratory lap in March 2010 with the supposition of scar tissue revision only to find out the doc took out my appendix as it looked "weird" even though he and my PCP swore it wasn't appendix related. 7 days later was admitted in patient for sepsis with fever and high white count. Went to see an adult infectious doc who freaked and quickly dumped me in the lap of someone I now refer to as a "grumpy" GI doc. The GI scheduled an upper and lower scope, all biopsies and cultures are negative even as of this week though my labs are remarkable for possible Crohn's. So, my gut hurts, my right side makes me crazy, I don't tolerate much food anymore and the GI doc put me on Endocort EC 9 mg. I started this on Tuesday-idk if it is helping or not. This grumpy GI doc has only seen me in the office once and not made any suggestions about what the future holds, diet or vitamin recommendations. In the last few days of accelerated learning from all of you, I have read up on the SCD diet, vitamin and mineral supplementation and will start modifying my diet soon. (just eating yogurt and fruit probably is not so very sustainable). So, thank you all for being available, teaching me so very much and sometimes I think I cry as much for you all as for myself. Thanks for being here.

Personal history: married, work full time have 4 kids and don't know how this disease will affect my love for scuba diving and travel.

Post Edited By Moderator (Nanners) : 5/6/2010 8:10:54 AM (GMT-6)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/6/2010 7:13 AM (GMT -7)   
Hi Grumpygi and welcome to Healingwell. Entocort tends to take a little longer to kick in, so do be patient a little while longer. If you are not feeling somewhat better in about 2 weeks I would call your GI and let him know. Also, for diet when first diagnosed they usually will put patients on a low residue diet. I personally follow this diet all the time as it works well for me. You might want to take a look at that diet for now and see how it might work for you. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined May 2010
Total Posts : 266
   Posted 5/6/2010 7:16 AM (GMT -7)   
H Manners: Thank you for responding. I am not sure what a low residue diet is and see people talking about a Makers diet, not sure what that is also. Any suggestions? Thank you!

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