I have been living with crohn's for some time... 28 years. The first 6 years I had 3 resections and then.. almost 15 good or maybe I should say, as good as they could be with crohn's years without much medication and no surgeries. In 2005 once again I found myself under the knife.
In all of these years I never once had blood issues or internal bleeding or needed transfusions.. not one single time.
Well, my luck ran out I guess. Since November I have had to have blood twice with my hemoglobin being at 7.1 the first time and 8. this last time which was just a couple weeks ago. I am testing positive for blood in the stool which to my knowledge is also a first for me. In years past it has always been obstructions from strictures that laid me out for weeks and sometimes months at a time.
I guess I am just wondering was I really really lucky for all those years or has something changed in the way my crohn's disease has come back this time. My GI says more than likely it is the small bowel that is in trouble... he did scope my stomach while I was in the hospital for the 4 days last week receiving blood and iron through IV, and he said everything looked good. I see him again tomorrow and I am quite sure he will want to schedule a scope down below.
I suppose what has me worried is, if nothing shows inflammation in the large bowel, how in the world are they gonna find the source of my blood loss?
I know so many of you have the bloody stool issues and I so wish you might tell me what they do to help it. I do not want to live the rest of my life so tired I stay in my bedroom 2/3rds of each day. I hate, absolutely hate watching blood dripping from a bag into my body. Maybe that is a stupid thing to admit to but it is what it is.
Anyway, your thoughts and experiences might be able to help me understand why things have changed and/or what I might be able to expect.
As always I appreciate everyone's thoughts and opinions.
Much thanks in advance.. Lynn
Dx'd 1983 Crohn's Disease, COPD 2000, Psoriasis 2002, Fibromyalgia 2005 along with Chronic Inflammatory Disease 2005.
4 resections 83, 87, 90 and 2005.
Currently taking Humira, Lomotil, Elavil, Sinemet, Flexeril, Nuerontin, Advair, Abuterol, MS Contin, Dilaudid and Xanax as needed.