Had another visit with the doctor today since I've been in a flare for 3 weeks. He's keeping me on 60 mg of Prednisone for another 2 weeks. He did tell me that he rarely goes that high with patients, but since the 40 wasn't helping it is what it is. I'm supposed to taper to 40 mg after that. Hopefully the flare will be cleared long before the 2 weeks is up, and I can taper sooner. He also upped my Lialda to 4 pills a day, where my maintenance is 2 pills per day. He said that he'll bring me back down after the flare is gone. However, if I run out of samples before that, I'm just going to have to go without, as I can't afford the $340 it costs per month with my crappy insurance. I'll be getting better insurance shortly, when I go full time at work. It was supposed to happen last week, but of course the stupid flare pushed that back.
I also asked him about the burning pain I was getting in the center of my abdomen. He told me that it's my colon spasming, and that it was pretty normal. He said that everything in my belly felt as good as it could right now, so that was a positive. He said that it seems as though I'm turning a corner because there isn't as much blood loss in my BMs, and also the fact that it's bad during the morning but then seems to taper off during the day is a good sign. Flares have always been worse in the morning for me.
I go back June 1st, this had better all be cleared up by then. This is the longest flare I've had other than my initial diagnosis, which went on for months before I got help. I'm so over it. He also told me that he hoped I had learned my lesson about taking my meds, and that the Azathioprine can take as long as 3 months to kick in, so by butt had better stay on them. Lesson learned, I'm tired of going through this.
Thanks for listening.
Rachael - 26 years old, diagnosed with CD in Dec. of 2004.
Currently on 60 mg of Prednisone, 2.4mg Lialda, and 100mg Azathioprine. Also multi-vitamins, and Anti-D when necessary. 1/2 tablet of 5MG-325 MG pain pill when needed
I thank God every day for an amazing support network of family, my boyfriend who has been there since the beginning, and my friends who never waver.