Miranda, I feel your pain. I never have energy. I manage to work 40 hours a week, but aside from that I do nothing! After work I go home with intentions of doing stuff but it rarely happens. I just had my 4th injection of B12 today, and honestly I can't tell much of a difference. My friends have stopped calling me and asking me to do anything bc I always end up cancelling. Between being so tired and fear of getting to far from the bathroom, aside from work I feel like a prisinor at home! I know this was not much help- but just know you are not alone.
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck