My life, healthwise, seems to be upside down right now. I am going to be starting on a study drug - just going through all the protocol that has to be done prior to the first treatment. I was on Mezavant, but that quit working for me. My doctor is wanting me off Entocort - he has me weaned to 1 a day. I am hating all this protocol stuff and I just want my first infussion. I have an appt next Thursday to go over the last of all the paperwork and then the following week will be my first infussion. Through all this the stress of worrying about our little unborn grandchild hasn't been helping either. My daughter in law has placenta insufficientcy and is being monitored very closely with the hopes that they baby can stay inside till May 25th, but at the first sign of additional distress they will take him immediately. They are about 2000 miles away it it is really feeling like 200,000 miles with this going on. As soon as they get the word that the baby is going to be born I will be booking a flight and heading there right away, but the waiting is so stressful.
Seems this is more like an 'oh woe is me' post. Just feels like nothing is following the proper course right now.
51 year old woman, married 30 years. 27 yr old son married to a wonderful woman. 7 year old grandson with new baby due the end of June! 24 yr old daughter living with her fantastic boyfriend.
Diagnosed with Crohn's in 1990 following resection surgery. Put on no meds on discharge.
5 years ago put on salofalk. Early 2009 taken off salofalk put on entocort 3 tab/day, mezavant 2 tabs/2 x's day, methotrexate inj once a week. Folic, Vit D, calcium, vit c, multi vit, tylenol arthritis.
Will be taken off methotrexate after next dialation (scheduled for asap) and put on IV drugs, just not sure which one yet.