I've come so far...

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Regular Member

Date Joined Jul 2005
Total Posts : 393
   Posted 5/14/2010 10:28 PM (GMT -7)   
I just had to share. I don't get on this forum much anymore, normally when I feeling kinda sad and just wanna know I am not the only person going through this. I began my journey here back in 05 while on TPN, covered in horrible cystic acne, blown up from steroids, and struggling to make sense of my 25 year old life taken from me, or so I thought.

Now I have been engaged, diagnosed, married, moved 6 times, had a baby, divorced, living off welfare, getting disability, and now returning to school online. It has been one hell of a "5years"!!! but I made it and I can remember hearing all the horror stories and feeling like life was over for me. Somehow we persevere and for that become all the more wiser.

So to all the people who have been around, thank you, and for all the new people...remember it is just a diagnosis not a death sentence. I for one, think that crohn's has made me stronger and smarter. I have been able to relate to illness and health issues with people now more than ever, and I am actually thankful for that.
Psalms 9:18
But the needy will not always be forgotten, nor the hope of the afflicted ever perish.

Finally awarded disability after 4 long years! Thank God for attorneys!
Dx'd with Crohn's colitis May 05, spread to ileum as of 08'-- Currently on Humira every 2wks, Pentasa, Entocort, Phenergan,Zantac, Ambien

Veteran Member

Date Joined Mar 2007
Total Posts : 1803
   Posted 5/15/2010 3:06 AM (GMT -7)   
Thank-You for your post. Very uplifting.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.

Regular Member

Date Joined Nov 2009
Total Posts : 145
   Posted 5/15/2010 7:18 AM (GMT -7)   
Thank you songstress.  I too feel that this disease has made me stronger, inside.  I never knew the depths of what I had inside of me, before I got Crohn's.  What's that verse?  Something like, "....as for me, God is thinking about me right now."  Kinda reassuring to know that you're never forgotten.  :-)
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
CD diagnosed 11/12/09
Cytomel and Levoxyl for thyroid.  Supplements as per my ND.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/15/2010 7:37 AM (GMT -7)   
I am so glad to hear that you have not let this disease beat you.  Its a battle thats for sure, but what doesn't kill us only makes us stronger.  I too am happy that after 35 years I too am still fighting and still winning.  It can be heck at times, but we Crohnies are special people and all fighters.  Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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