Hi Jennifer, I'm actually very interested in this question also. I seem to have headaches on a daily basis (just did my 4 loading doses 10 days ago and my next 2 in 5 days) and sometimes feel like I have a stiff neck when I get the headaches. The fatigue is getting to me also. If I lay down, even for a few minutes, I am out like a light.
I also have a fistula that for whatever reason seems to be hurting more. It never really bothered me before and would only feel sore if I had alot of D and was wiping alot. Now I FEEL it...all the time, even inside, if that makes sense. Like something is going on in there, I just haven't figured out what. It is sore and draining which it never did before. I have a Dr appt in 2 weeks so I will bring it up to him then, but am curious if anyone else has noticed this.
On the up side, it seems to be helping my flare. Haven't had to take Immodium in over a week.
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.
Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.Life may not be the party we hoped for, but while we are here we might as well dance!