Please read.....I'm freaking out

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Regular Member

Date Joined Apr 2010
Total Posts : 119
   Posted 5/18/2010 8:47 AM (GMT -7)   
Hello Everyone, I am so sorry if I sound crazy right now but I am having bad anxiety. I was feeling pretty good for about a week. So far since I have found out I have had crohn's I have had nothing but loose bowels and when it's bad a lot of diarreah (I never experienced pain), I guess from the inflamation I have where the small and large bowel meets. I have been undertreated for years and the only medication I am on right now is asacol 3 pills twice a day. When I had my hospital stay a few weeks ago I was able to get a GI doctor in the hospital. I had my first appointment last week and basically they took info and I go back today. I believe the plan is to start me on prednisone and 6mp today from what he told me. Well, like I mentioned I was actually feeling pretty good since last week which in my case means not having watery diarreah and it just being very soft and not running to the bathroom every 5 minutes. Well, starting Sunday I was going through some stressful stuff and when that happens with me I don't really eat and that made me start using the bathroom a little more then during the week. Yesterday I went so much in the morning that I wasn't making it to the bathroom (sorry for to much info). I had things that I had to take care of and being that I had to go out I couldn't eat because then I wouldn't have been able to leave the house at all. I ran around all day taking care of as much as I could and made it home just in time to hit the toilet (at this point I really have no clue what is coming out of me because there is no food in me). I have been having really bad anxiety and for the last couple of days the xanax hasn't even been working to calm me  cry  . The only thing I finally ate last night was 3 waffels and finally fell asleep. I woke up early and have been using the bathroom like crazy, it just starts coming out and if I didn't put to pads next to each other I would be changing my clothes everytime. I am feeling very anxious and upset because I was feeling good and now I am back at the bottom. I do know that my period is coming and I don't know if all this has something to do with it, I have noticed over the last few months that there might be some kind of pattern but it's not always the same so I can't say if one has anything to do with the other.
Well, my concern is that I have to go see the GI doctor today. I can't eat or I won't be able to go and I just took an imodium to hopefully stop going long enough to make it to my appointment. I don't know if the stress I have been going through is causing this especially because the anxiety is so bad or if it has something to do with my period that should be coming about thursday. My concern is about the steroid, if my anxiety level is almost at 10 right now and I am not sleeping to well won't the prednisone just make it much worse? I can't take feeling like this and definatly couldn't take the anxiety getting worse. I was thinking about asking the doctor about just starting the 6mp. I know it can take 4 or more months to feel any results from it but I have been suffering this long so I figure maybe I should just wait for the 6mp to kick in. My doctor told me last week that I can take imodium as much as I needed to so I figure I can take that until the 6mp kicks in. The only reason why I wanted to take the steroid is to put some weight on because I have lost about 60 pounds but now I don't care about the weight if I am going to feel like a crazy person from the steroid, it's bad enough that I alreasy suffer from anxiety/panic disorder. Sorry this is so long but I really needed to write and get my feelings out and maybe get some advice.  
37 year old female and a proud mother of 8 kids (5 still living at home) and a very supportive Husband
Found out I had crohn's disease about 3 years ago, I haven't had proper treatment since :-(
Have had rectal abscess and now a rectal fistula, Medications I have taken for crohn's is..... Asacol and Entocort EC......Currently taking....Asacol
Suppose to start Steroid and 6mp next week (May 18, 2010).....I'm so scared :-(
Seton drain was put in on May 4, 2010
I also suffer from very bad anxiety and panic attacks for over 10 years (after my father passed away)
I have tried almost every medication for it but nothing worked or I had a bad side effect so for the last 6 years have been on xanax 1mg., 3x's a day
I started having joint pain about 7 months ago :-(

Regular Member

Date Joined Jul 2008
Total Posts : 384
   Posted 5/18/2010 9:05 AM (GMT -7)   
I'm so sorry you are going thru this. In my experience, just before and the first couple of days just starting my period my crohn's symptoms are horrible. I think it has to do with the hormones. Plus, the stress and anxiety don't help either. Don't be afraid to take the immodium if you tolerate it. I use to take 2, 2-3 times a day. It really gave me some relief, and for me, it never constipated me, just made the D more formed. More pudding than water, so to speak...

Prednisone could make your anxiety worse, it is a side effect. But, it does tend to work quickly, making you feel alot better faster, which could ease your anxiety about running to the bathroom and having accidents. I had to take my anti anxiety meds when I was on it, maybe they could increase your dose of those while you take it.

Personally, I would try the Pred and see how it works for you. Have you ever taken it before? Each person experiences the side effects differently so it is worth a try to help get your flare under control.

Good luck!
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!

Regular Member

Date Joined Feb 2007
Total Posts : 430
   Posted 5/18/2010 10:32 AM (GMT -7)   
If you're put on pred ask for an anti-anxiety med as well - the two aren't mutually exclusive.

Veteran Member

Date Joined Oct 2006
Total Posts : 2082
   Posted 5/18/2010 11:44 AM (GMT -7)   
I've been on prednisone many times, and it does have side effects, but I would go back on it with those symptoms you're experiencing.

Sounds like you've got a lot on your plate, so it's understandable to have that much anxiety. I have found that the Crohn's itself makes me very vulnerable to stress and sometimes life just gets to be too much.

I know when I've been in this type of flare I usually have to take an antibiotic like Cipro or Flagyl along with the pred. but that will be up to the GI. Hope you get better soon.

50 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.  Severe depression past two years.

New Member

Date Joined Apr 2010
Total Posts : 8
   Posted 5/18/2010 11:46 AM (GMT -7)   
I had an experience very much like yours except for no anxiety.  I was horrified to take Pred but a Dr. at Mayo Clinic urged me to try it and it was almost like a miracle.  Within 2 days I had incredible relief.  Side effects were minimal for me.  I had such incredible energy it was crazy.
I am now on Imuran and Asacol.  Have occassional D but nothing Imodium won't take care of.
At least try the Pred....if you can't tolerate it you can always go to plan B.  Stay in touch with your GI and I wish you all the best.

Veteran Member

Date Joined Feb 2010
Total Posts : 925
   Posted 5/18/2010 2:14 PM (GMT -7)   
Personally I love waffles............but if you use maple syrup, as I do, you need to remember that maple is a bit of a natural laxitive.  If you are already having issues the maple may increase your trips to the bathroom.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 5/18/2010 2:38 PM (GMT -7)   

I am so sorry you are going through this!  That is such an awful and scary feeling to have to run to the bathroom, especially combined with pain.

In my experience, the 6mp didn't work at all for me - the prednisone I was on was what was calming my insides and once i went off that and was only taking the 6mp, I had another flare.

I was on Remicaide, which I developed antibodies to recently, and started Humira a couple months back (also took prednisone during that flare).

In my case, the prednisone made me lose weight, or at least kept it down - I lost a ton of weight from my flare and once I started feeling better I was eating a lot more, and I think the prednisone was keeping my metabolism going (or at least it felt like that with my heart constantly racing).

I hope the 6mp works for you, but one thing I would recommend is that when you go to the GI, don't take Immodium - let him/her see you at your worst so he/she can properly diagnose you.  Also, tell him your concerns about pred and get an RX for anti-anxiety and sleep meds to help.  Prednisone is, to me, the worst drug ever, but it seems to be th only thing that calms my intestines quickly during a flare.

Good luck!!!  Try not to stress about this!  :)


33 yr old Female
Crohn's Colitis
DX 12/06
Humira, finally just finished weaning off 60 mg of Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, Omegas, a few other herbal supplements my natureopath has me on.
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 5/18/2010 4:24 PM (GMT -7)   
If you are new to this, anxiety & panic attacks are understandable. And Pred is notorious for causing emotions to run amok ( I used to tear up during any commercial with the slightest emotional relevance to my situation, during my pred years..). Try to hang in there. And excessive worry doesn't do your Bowels any good. What is coming out is mucus, since we always have a lively biope in our intestines. they are never truly empty.
I'd try the Immodium, though when I'm in bad Flare it can cause some pain or fail. Otherwise, its a lifesaver!


Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 5/18/2010 7:53 PM (GMT -7)   
When prednisone caused lack of sleep for me I never suffered from lack of sleep, if you know what I mean. Even though I got less sleep it seemed to be enough. So that hopefully will help you abit. Don't give up, explain everything you fear to your Dr. and hope he/she listens well and treats you appropriately.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Veteran Member

Date Joined Jan 2003
Total Posts : 6130
   Posted 5/19/2010 2:40 AM (GMT -7)   
well hopefully you got some more info when you went to the dr.. hope you get to feeling better i wonder, have you had any scans that might show that having 8 kids kinda messed stuff up in there? i mean when you were pregnat maybe some loops of bowel got adheard to some places and that may be causing some of the discomfort etc..?

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/19/2010 6:23 AM (GMT -7)   
When the anxiety hits that creates its own bowel problems along with the Crohns. Anxiety will also cause IBS like attacks that cause me to have diarrhea, nausea and vomiting, and I normally suffer with more constipation. I really think you need to talk to your doctor about a different anxiety med as the Xanax is no longer working for you. Maybe you need to go onto a daily med instead so that you have the constant stream of med in your system to help quiet the anxiety.

I really think you need to give the Pred and 6mp a chance to get your Crohns under control. I think once you can get the Crohns feeling better, that in turn will help to decrease the anxiety.

I also wonder if Randy might be right and you are suffering from some adhesions in there that are causing you some grief. I wish you a peaceful day.

Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Dec 2005
Total Posts : 637
   Posted 5/19/2010 12:22 PM (GMT -7)   
Pred causes anxiety.

CD also causes anxiety.

Doctors cause anxiety too.

Exercise is the best medicine for anxiety, but if you are really sick, then you are proably not going to be exercising.

Benzos work great(xanax, valium, ativan) they all work fantastic, but they are not fun to try and get off of when the time comes.
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