Hi guys hope all of u have been doing okay. I haven't really posted much bc my main symptoms right now have nothing to do with my digestive tract. My stomach has been doing great on Remicade. The rest of my body is not. In fact i walk like a 90 yr old woman at 29. I know something is not right. I keep going to different drs for them to tell me its just inflammation in my joints from crohns and okay i may have accepted that for a while but nothing is helping. I have severe leg pain, on pain meds all the time now, otherwise I will just scream and cry. I've gotten cortisone injections in my hips, no help. I can't do grocery shopping anymore. That would put me down for a week, or house cleaning for that matter. I have tingling in both legs, sharp shooting pains, sore muscles, joint pains you name it. Recently I developed a chest pain and a lump in the center of my chest and shortness of breath and now even face pain. I don't know whats going on.... My stomach is really the only thing that feels good. I'm on Neurontin (for leg pain), Remicade (for crohns), and pain meds. I developed steroid withdrawal (sever joint pain) before starting remicade. So I think thats why my drs dont think its the remicade. But as more things develop its starting to really scare me. I've tried all maintenace meds for crohns with no luck so theyre reluctant to pull me off the remicade and frankly so am I. I would appreciate any guidance. I'm going to see a new rheumy and neurologist in a week.
Current meds: Remicade
Tried: Prednisone, sulfasalzine, lialda, antibiotics, imuran
28 yr old female w/ crohn's colitis