Do you know how you got CD?

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Hugo's Mom
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Date Joined May 2010
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   Posted 5/25/2010 2:42 PM (GMT -7)   
they have confirmed my soon to be 8 yr old has Mild CD, God Bless all of you if his is mild I can't even imagine what you go thru.

But I can't figure out where it came from , no one in the family has it.

Do you all have a relative that has it? or did it just start one day?

Just curious

My son who is almost 8 was just dx with CD.

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Date Joined Jul 2008
Total Posts : 384
   Posted 5/25/2010 3:24 PM (GMT -7)   
To my knowledge, I am the first and only with any type of IBD.
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!

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   Posted 5/25/2010 3:30 PM (GMT -7)   
I'm the first to have IBD in my family.  It randomly started when I was 16.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.

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Date Joined Oct 2004
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   Posted 5/25/2010 4:02 PM (GMT -7)   
If I could answer that, I'd get a Nobel Prize. or some *beep!* reward, anyway.
My Mother has/had Colitis. Possibly one other family member, also..


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   Posted 5/25/2010 4:26 PM (GMT -7)   
Firstly, sorry about your son - never like to hear about children getting this disease. I hope his mild CD remains mild.

Secondly, I do have a couple of relatives with it. A brother and a cousin. It's thought an aunt of my mum had Crohn's, too. There is a tendency for Crohn's to run in families, but not everybody who gets Crohn's will have a relative who has it. Bear in mind, though, that even today Crohn's is a hard enough disease to diagnose: it must have been almost infinitely harder 50 years ago to diagnose. It's possible that those who think they don't have anybody else in their family with IBD had relatives in the past who had it but were never diagnosed.

This is a quite short but informative page on the causes of Crohn's, if you're interested:

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   Posted 5/25/2010 4:51 PM (GMT -7)   
Cup of Tea and I agree on the fact that some families might not know that a family member of an earlier generation had either UC or IBD. My grandmother carried matches every time she entered the bathroom. When I got older, I learned that she had very stinky diarrhea many times a day. Being a very proper lady, my grandmother NEVER spoke of bowel habits. She was always very careful about what she ate. After she died, I learned that she had a bowel resection for a blockage when she was in her early thirties. I got the personal file she kept and when reading through the medical papers I found several with a diagnosis of "regional enteritis" - Crohn's. Her son and one daughter both developed ulcerative colitis in their 40s. I have CD and have one 1st cousin that surely has it but refuses to go through the diagnostic process. At some point he'll get so bad he will be forced to deal with it.

I'm so sorry that your son has Crohn's. Mine was classified as mild, and I am happy to report that my last scope showed no signs of Crohn's activity. It is possible to have remission. I hope your son heals quickly.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

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   Posted 5/25/2010 7:33 PM (GMT -7)   
No one in my family has ever had IBD, but my aunt had MS, and I believe some of the same genes are a factor. I'd much rather have CD than MS though, so I consider myself lucky if I had to get one of the two.

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Date Joined May 2010
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   Posted 5/25/2010 10:09 PM (GMT -7)   
I was dx 2 months ago with Crohns - I have a sister and a cousin who have had it for the past 20yrs!

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   Posted 5/25/2010 10:59 PM (GMT -7)   
Genetics for me, my mom developed UC AFTER I devloped CD (funny how most assume it's always the other way around) with IBD it's like a ticking time bomb, it'll just go off when it gets triggered...and for all I know, many other family members from the past could have had it, it's impossible to know every family member's bowel habits, especially all the generations and IBD has been around for quite some time. Personally I suspect my "trigger" was birth control pills (according to research there is a link to BC pills and crohn's specifically).
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

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   Posted 5/26/2010 12:40 AM (GMT -7)   
No knowledge of relatives having IBD in our family, there are several relatives that have IBS though(grandparent/aunt/cousin)
Perhaps they haven't been properly diagnosed ;)

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   Posted 5/26/2010 2:43 AM (GMT -7)   
cousin has it.. and we are all pretty sure you dont "just get" crohns. its something that builds untill you have symptoms... i would bet most start having trouble many months before any outward sign develops.. like always having 'food poisoning" being sensitive to certain foods. or change in poop but we dont discuss it untill it gets bad. its been around for decades under many names. probably lumped in with "consumption" as lots of cancers were back in the day.

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   Posted 5/26/2010 5:40 AM (GMT -7)   
I am the only one in my family with a confirmed diagnosis of Crohns. Mom always believed that my Dad's sister probably had some form of IBD, only they didn't know much about the disease in those days. She said my aunt always had horrible stomach/bowel issues.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

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Date Joined Jul 2009
Total Posts : 61
   Posted 5/26/2010 6:04 AM (GMT -7)   
I am the only one diagnosed with CD. But there is a history of autoimmune diseases on my mom's side of the family, including auto-immune hepatitis, IBD and celiac's.
Diagnosed with Crohns in 1998. Been on and off pred, entocort, immuran, asacol. Currently on Remicade every 6 weeks along with Asacol. Began having joint pain 01/2010.

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Date Joined Aug 2007
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   Posted 5/26/2010 6:20 AM (GMT -7)   
I found out after the fact that my grandmother's cousin had UC and that side of the family (my grandmother and dad) has had a history of stomach problems and bleeding ulcers, so others could have Crohn's or UC as well and just never been diagnosed.  My dad also has other immune problems like thyroid disease and vitiligo and my mom has thyroid disease as well, so I think I was just given the short stick from the get-go.  Didn't flare up until I went through some really stressful stuff one year...getting in a bad car accident and then having a stalker and that's when it became active. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

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Date Joined Jan 2010
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   Posted 5/26/2010 6:44 AM (GMT -7)   
I know it can be a hereditary disease but like a lot of ppl say on here, you don't know if past generations have had it or not. If you look back through the years not much was known about IBD, and if you had a bad stomach they automatically presumed it was a virus.
I am the first in our family to be diagnosed with crohns but i know my uncle has IBS which he is suffering quite badly with and my dad has always had a lot of stomach issues but to my knowledge has never had it checked out in depth.So they too could have crohns but not been diagnosed as yet.
I have always had more health issues than most of my family from when I was younger and it was thought I also have wegeners granulomatosis which is an auto immune disease, and it has been said that numerous ppl with crohns have other autoimmune diseases too.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections

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   Posted 5/26/2010 8:08 AM (GMT -7)   
Welcome, Hugo's Mom!

No one in our family on either side had/has any kind of IBD; this is why I firmly believe there is an infectious component for some.

My son was diagnosed right after his 15th birthday, but showed minor signs at a much younger age. His seems mild, too, as we were told two years ago to discontinue his only med--Asacol. He follows the SCD.
Mom to 18 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.

Threads discussing diet:

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Date Joined Mar 2009
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   Posted 5/26/2010 8:41 AM (GMT -7)   
Hi, Iam the only one in my family with CD I know it MAYBE coincidence but, I got most of the symptoms 3 days after having the Rubella injection at school when I was 13. It still makes me wonder if I had bunked ofF school that day if I would have had crohns. Bev X smilewinkgrin
Diagnosed with crohns at 13 now 43
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 30mg (for Anxiety.)

" I may not be there yet, but I'm closer than I was yesterday."

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   Posted 5/26/2010 9:16 AM (GMT -7)   
Bad breeding :)

My grandmother has auto immune disease and all of her 4 kids.

I am the first to have CD, but not the first to have some kind of auto immune disease.

I was planing on not continuing these bad lines but my hubby has other plans :P
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ ~

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Date Joined Dec 2005
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   Posted 5/26/2010 9:53 AM (GMT -7)   
I have some ideas, but really, no I don't know.
I remember having problems shortly after getting immunizations for school, seems like measles, I have always thought there was more to that.
I suspect genetics more than anything else.
I have 2 sisters, they both had babies last year, both girls, one week apart.
One sister, who has a child already with no problems, had a baby with severe problems, I think it is called osteogenesis.

The other sister, had a healthy baby.
Watching these girls grow up, it is pretty much in your face, just how different they are.  One is walking around into everything, wow she is a handful.  The other cannot even crawl around yet.
Also, My mom was dx with IBS a couple years ago, but it's very mild, she takes no meds for it.

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   Posted 5/26/2010 10:02 AM (GMT -7)   
No known family history here. Kinda think there is a multitude of issues that trigger it.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

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   Posted 5/26/2010 12:29 PM (GMT -7)   
I remember when I got CD.  I was 15 and when I heard the world ulcerative I thought how did I get an ulcer ( I was originaly told I had UC).  This was somthing new for my family as no one alive had anything like it.   When we thought about the past, my mother knew a cousin had stomach problems many years ago and had his intestines would cause his death years later.  Now we know better and assume he had IBD.  Some years later my brother would start getting symptoms and now has been diaganosed with UC in the rectum.
I am sure if we were able to go back further in our family history, we would find IBD present in someone.  Many years ago no one knew what IBD was.  Now it is a commone disease with many names.

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   Posted 5/26/2010 12:57 PM (GMT -7)   
I always had tummy trouble as a kid, but was not diagnosed with IBD until age 37 when I started passing blood, right after the birth of my first child.

My dad has had ongoing issues but there were no findings on multiple scopes, so he says he's fine.

His mother had many bowel issues but died at age 93, happy as ever.

My dad's 1st cousin, once removed on his mother's side, is seriously ill with CD.

Not that I blame my paternal grandmother or anything.

My 10 yr old daughter has frequent "tummy aches," sometimes passes blood in her stool - we have avoided doing any diagnostics since it's so invasive - what was the driving issue that sent you and your 8 year old to the dr?

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   Posted 5/26/2010 3:10 PM (GMT -7)   
Hugo's Mom- was your son ever on antibiotics? It could be a fungus link to CD and UC. (Antibiotics are mycotoxins.)

Regular Member

Date Joined Jan 2003
Total Posts : 224
   Posted 5/26/2010 3:41 PM (GMT -7)   
Not sure if this is the CAUSE but I started getting sick right after I began my series of Hep B vaccines for middle school. Literally. I just got my shot records for college and discovered this. I got my first one Aug 16, 2001. I saw my GI doc for the fist time Sep 2001. I has my second shot in the series one sep 16, 2001. and my third shot on march 4, 2002. I was diagnosed on March 26, 2002. I did have a bacterial infection (H. Pylori or something) in Sep 2001. So im wondering if the vaccine may have caused the bacterial infection and then the bacterial infection triggered my crohns. I also have a LONG family history of CD. BOTH of my grandmothers (maternal and paternal) have CD and my older sister was diagnosed after I was. I have an uncle with it and many more extended relatives with either CD or UC.

someone couldnt pay me enough to believe that genetics are not a role. But i have begun researching the Hep B vaccine theory.
20 yr old female. dxd 2002. previously on 6-mp,Entocort, Prednisone, Flagyl, Cipro, Fiber, and Remicade. Currently on Humira and Elavil. Had first resection in Oct. 2009. (half of colon and some of small intestine)

Regular Member

Date Joined Jan 2010
Total Posts : 432
   Posted 5/26/2010 4:18 PM (GMT -7)   
I'm the first in my family to have Crohn's, but my maternal grandma has lupus.
When she found out that remicade can cause lupus, she REALLY did not want me to go on it.
My dad didn't believe I had Crohn's for the longest time, and my mom still thinks I picked up Crohn's from some bad prime rib.
But I know better.
Some people just have it coming.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
The surgeon said it is inoperable and so I start Remicade on May 7th.

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