Switching doctors

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Regular Member

Date Joined Mar 2010
Total Posts : 105
   Posted 5/26/2010 7:30 AM (GMT -7)   
I seem to have come full circle and am just as bad as when the Crohn's first appeared in February.  I went to the dr yesterday and waited almost 3 hours before even being seen.  I called last week when symptoms flared up again and he said to go back up on pred which I have (40 mg a day).  Now he wants to start all over again with small bowel follow through then colonoscopy again.  I am fed up with this guy.  I have made an appt for another GI in a larger town where hopefully I will get more results! I was unable to get an appt until June 8 though.  My question is, do I need to stay on the 40 mg pred that long?
Diagnosed w/ Crohn's 2010
Diagnosed w/Hemicrania Continua (variation of migraine disorder)fall 2009
Diagnosed w/bilateral sacroiliitis/possible developing ankylosing spondylitis due to Crohn's 2010
Current meds: Pentasa, prednisone taper back up to 40 mg a day, omeprazole (Prilosec), zonisamide (Zonegran)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/26/2010 8:02 AM (GMT -7)   
I think I would stay on that amount until you see the new doctor again. As far as the other doc wanting more tests, this really isn't unusual. He may be thinking something else is going on and want another look to see is there is any strictures or anything else causing your issues. IMHO
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 5/26/2010 11:02 AM (GMT -7)   
Unfortunately it isn't all that uncommon. CD can be fast moving and change rapidly. I had more than 10 colonoscopies one year, most with endoscopies along with it because I was having so much trouble and not one of my doctors could figure out what was going on. They could see the inflammation and ulceration, just not the cause. I was inpatient at a local hospital and then sent by ambulance to a teaching hospital in the major city. So I saw a good many GI's during that time and still I stumped them all.

That isn't to say that getting another opinion isn't a good idea, but you probably will still have to re do the testing. Sorry. sad

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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