So I'm majorly grumpy cause my doctor's being an ass and won't let me get off the Prednisone and I don't understand his reasoning! He wants me to stay on til I start Humira but WHATS THE POINT when I have crohn's symptons, so obviously the Pred isn't doing anything anymore! Anything good anyways! I'm only on 10mg but its keeping my face all fat looking and I hate explaining to new people I meet that I'm on steroids like I feel I need to apologize for my face. But why is he keeping me on this when it's not doing anything? I just don't get it. I hate feeling like a whiny little girl complaining about something trivial and superficial but at the same time it's my face and i'd like my normal one back, thank you very much.
But the main vent is that insurance and New York suck and my pharmacy coverage is capped at 3000 dollars which means awesome, I can't start Humira. I called my insurance company and she didnt care, even when I was being a bit dramatic and was like awesome, I might die without the medication. She's like there's nothing I can do, are regulations are defined by the State, go call them. Right, because if I just go and call "The State" they are really going to care about little ol' me. And apparently I can't go on medicare or whatever that stuff is called because I still live with my parents and I made too little, or something like that. I don't know, I was really excited to go on a new medication where I actually might not be in pain all the time (that's my norm, i'm almost always out of remission, and since doctors don't believe in painkillers i just suck it up and just handle being in pain all the time.) and now that's being taken away from me.
I'm just bummed. This person doing my paperwork thinks we'll be able to find a way for someone to pay for my medication but it just doesn't sound likely. I wish the economy didn't suck and I had a job that actually gave me benefits, instead of this crap healthy ny thing which sucks horribly. Yay America...
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year. Have been on Prednisone, Asacol, Entocort, and Remicade in the past.
100 50 mg of Mercaptopurine. Just got put back on Asacol and Entocort. I hate swallowing pills. 5 day hospital stay April '10. Have to be put on 2 antibiotics and (cry) 40 35 30 mg of Prednisone. Turning into a walking zombie with the lack of sleep (around 2 hours a night), but at least I've been super productive!
Debating going on Humira...need advice! :P