Been taking 9mg of Entocort for almost 3 weeks and am due to switch to 6mg in two days - the GI put me on a 9-week course altogether, 3 weeks each at 9mg, 6mg and 3mg respectively. From what I've read on the internet, that seems rather a short course. It seems more standard to take 9mg for 8 weeks, 6mg for 12 weeks and then presumably 3mg for however long.
Thought of calling the hospital to see if I can extend my 9mg prescription for another month or so. But can't decide if it's even worth it. I do like feeling human again, which I'm slowly beginning to do. A month ago it was like I was running on an almost empty tank of petrol and now that tank has been half filled. But my GI symptoms (bloating, diarrhoea, pain) don't seem to have improved at all. They are roughly the same as they were before the colonscopy, which, considering it showed that my colon was in a dreadful state, doesn't seem too good.
With that in mind, would it be a waste of time extending the Entocort course? If nothing else, it would be nice to have a bit of available energy for the upcoming summer, although that seems a tad frivolous reason to risk osteoporosis, glaucoma, moon face, etc. Of course all this is probably a moot question, as the hospital will probably refuse to extend my prescription. But I won't know unless I ask.
In early August I'm seeing the GI again to discuss taking Remicade. I'm wondering if they want me to be off the steroids completely before going onto Remicade, although plenty of people here seem to take a steroid and a biologic simultaneously.
Also on 6MP, but I started that at the same time as the Entocort so that can't possibly be having an effect yet.