The thing about
my doctor is I've asked him multiple times and he always rushes me and doesn't give me explanations and just says to simply stay on it without reason. But now that the Humira is being pushed back and who knows when I'll go on it (if ever) I can't stand it anymore.
Today I am getting guilt tripped by my friend because she is having a bbq and my ex and his (skinny) girlfriend is going to be there so I figured that I'm not going to go 'cause it will probably depress me. Maybe some may call it vanity but I do not want to be there and have him see me like this. I've deal with self esteem and weight issues my whole life and I'm generally okay with myself these days but not right now with the steroids in me. It's annoying that my friend can't understand why this might be a situation I might not want to put myself in, especially since I'm single, everyone these will be couples, including my ex, and I'll just be there by myself with a face that looks like a blowfish. (Meanwhile she's thin and gets hit on all the time and thinks she's fat for some reason, yet can't be understanding about
I'm not going to do it cold turkey, I think right now I'm just going to do 5 mg, I've been on 10 mg for weeks now, so I think that's safe...I just want to be done already.
And it won't be a few more days, my doctor's office is very nice but their phone system sucks. What will happen is I'll call Tues or Wed, leave a message. He'll call me but I'll miss the call, and it will be after office calling hours so I won't be able to call him right back. So we'll play telephone tag until eventually a few weeks later he'll finally get the memo but since I won't ever catch him on the phone he'll just say "Stay on it Sara, blablabla, it's doing something, yadah yadah"
I'm just bummed. And frustrated. And pissed.
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year. Have been on Prednisone, Asacol, Entocort, and Remicade in the past.
100 50 mg of Mercaptopurine and 10 mg of Prednisone. 5 day hospital stay April
Trying to get on Humira but having insurance issues.. :(