Rovin1959 I'm a friend of Bill and Bob so I understand what your going through. I went to a pain management Clinic today. It took about
20+ minutes just to fill out the paperwork which was obviously testing me on I don't know what but generally examining all areas of my life with regards to pain meds. Then I met the Doctor who continued to discuss my answers as I didn't understand a few and couldn't answer a few more. Then we just chatted me giving him a history of what and when I used pain killers. How the pain I get from crohn's affects how I uses meds. For instance the difference between crohn's arthritis and a partial blockage with cyclical pain, which are two very different types of pain. My journey along the Bill and Bob route was also covered very well. Much more was covered, education was very involved in the process and I learned quite a lot especially why my family Dr. was giving me meds I thought were pointless. Now I understand why. In all we talked for an hour! A hour! I've never talked to any Dr. for that long. He obviously wanted to know exactly were I was at and he wanted me to understand were I was at. He made sure I left feeling vindicated that I'm doing the absolute best I know how to control my drug use. That was huge for me as controling my pain meds to what my Dr. has prescribed is a battle I continually go through. He said I was right on top of it and he was impressed at how I managed my pain. He also made sure I understood there are different ways we can try to lower my usage more but it'll take experimenting and time. I know we discussed other things but they escape me right now. I was very unsure of what a pain management clinic was all about
but went there with the objective of trying anything they recommended. I left feeling great and vindicated that I have been doing very well and together with him the future will involve less not more narcotics but will still manage my pain sucessfully. If my experience is "normal" then you have nothing to lose going to a pain specialist and alot to gain.
P.S. Becoming undone, Dr. was great at explaining visceral pain and the differing treatments.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Imuran and Prednisone in the past.