I want this doc on ALL research teams (sarcastic rant)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 5/31/2010 5:34 AM (GMT -7)   
Well my husbands niece was dx'd with CD a few years ago.  The family is a family that "enjoys" the medical conditions they have...you know why take an aspirin when you can take a vicodin types.  So everyone was all upset for her and they wanted her college to change the food offerings in the cafeteria just to meet her needs. And everyone should pay attention to her because "she's sick"
Well...lo and behold she is now "cured".  To quote my SIL "her doctor said if you have a mild case it can just go away".  I want this doc on every research team as he seems to have found the cure that none of the other docs can find let alone find a cause.
Ugh...I tried to make them understand that it does not go away, it goes into remission.  I even showed them my skin blotches that are a result of my CD-trying to show them the many sides of CD.  That was a waste of time.  Of course you know that this means that my symptoms are not real because the niece "does not have any symptoms"  Crohns is nothing, it just goes away.  Thank the heavens my husband knows better than to believe what they are saying.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa, cholestyramine, iron and vitamin supplements. 
Prepare for the future, but live in the present

Elite Member

Date Joined Jan 2010
Total Posts : 10134
   Posted 5/31/2010 6:39 AM (GMT -7)   
Ha! @ a "mild case" just going away. Thank you for giving me my first laugh of the day.

So I take it that the niece isn't on any medication for Crohn's? Is she still following whichever diet she required the cafeteria to change its menu for? I worry a bit for her as you are quite right: the disease does not go away. Oh, dear god how it does not go away. In fact, without treatment it usually gets worse. It may take a matter of days, months, or years, depending on the rate of attack. But quite commonly it is years in fact as Crohn's can be a very slow developing disease.

To give my story briefly, when I was diagnosed 11 years ago my symptoms were so mild I didn't even really believe I had Crohn's. I thought that the diarrhoea would clear up at some point and that would be that: no more disease. I couldn't have got it more wrong if I'd tried. Nobody explained anything to me and reading the patient information leaflets didn't help me to grasp the chronic side of the disease. Chronic means the same thing as long-term. That's what your niece's family isn't seeing: they're only seeing the here and now and thinking that because your niece is okay now, she will always be okay. That really is very unlikely to be the case.

And that's why that doctor is so remiss. I do feel for the niece, as between her doctor and her family, she has almost no chance of taking her Crohn's seriously. I just hope that when the symptoms return (as they will, if it's Crohn's) they return in a mild and gradual form, giving her time to adapt and start treatment.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/31/2010 6:44 AM (GMT -7)   
Uggghhh God how I hate hearing this stuff. There is always that person that says if you just eat this, or don't eat that, or take this supplement or that supplement and your Crohns will be cured.

I have a mild case of Crohns myself, but have had 2 resections and mutiple other surgeries because of the many ways Crohns affects your whole body. Only had 4 flares in my 35 years with this disease, but in many other ways I was always reminded of my Crohns. Let them go along in their ignorance, I know Crohns and this little girl is gonna have some surprises soon. As Crohns may be quiet for a little while, and if she is unmedicated, I can guarantee that it will return and return with an ugly vengence. It always does! And then my friend, you can gladly say to them all "I told you so!"

Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Elite Member

Date Joined Jan 2010
Total Posts : 10134
   Posted 5/31/2010 7:06 AM (GMT -7)   
It's the girl who suffers, though, not the family...

Not really fair on her. She's young. She probably thinks she knows it all and that she's invincible. That's the way the young think. (Not every single one of them, but you get my drift.) And mild Crohn's is an "invisible" disease so to speak; that is, you look the same and nobody is gonna notice if you're going to the toilet a bit more often than normal or if you're passing liquid stools. I can forgive even the family for not taking it seriously; why should they have insight into a disease that takes sufferers years to learn about?

But still, they have been warned. Some people just like to lack common sense, I guess. As for that doctor, I do have words for him but I won't post them here.

PS: Oh, and where I ended up? Being told a month ago by my doctor that my Crohn's would "kill" me if I didn't take anything. That's where "mild" Crohn's got me a decade down the line and god only knows I did my best to ignore it for all of that time. That's probably why I ended up being told it would kill me.

Post Edited (NiceCupOfTea) : 5/31/2010 8:14:19 AM (GMT-6)

Regular Member

Date Joined Nov 2009
Total Posts : 145
   Posted 5/31/2010 8:41 AM (GMT -7)   
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
Crohn's diagnosed 11/12/09
Cytomel and Levoxyl for thyroid.  Supplements for all else as per my ND.

Regular Member

Date Joined Nov 2003
Total Posts : 437
   Posted 5/31/2010 11:19 AM (GMT -7)   
Wow! I am cured! Hallelujah! Wait, reality kicks in...no cure. Darn!

Stupid docs!


Regular Member

Date Joined Feb 2009
Total Posts : 269
   Posted 5/31/2010 2:16 PM (GMT -7)   
I met a large number of my partners distant relatives. I had been ill and they were asking about it. Our conversation ended with them telling me about their dicky tummys and how they might have crohns. I am thinking huh. You havent got a clue
Diagnosed 2005.  41 year old female living in UK
Current medication  -  infliximab infusions, ranitidine, Vitamin B12 injections, anti depressants

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 5/31/2010 2:31 PM (GMT -7)   
I only wish I had listened...I also thought my dx was wrong after I went into remission...I stopped all my meds...if I had kept up my maintenance meds throughout, I do not think I would have as severe a case as I do now...
"The earth laughs in flowers"

Veteran Member

Date Joined Feb 2010
Total Posts : 925
   Posted 5/31/2010 2:52 PM (GMT -7)   
Or possibly the Dr. had the DX wrong and is now covering?
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 5/31/2010 4:12 PM (GMT -7)   
ROF****! That explains it! I'm cured, & all those related Health problems were just figments of my imagination! <SNORT>
Idiots, try learning something, instead of consulting a paragraph in some ( Out of date likely!) textbook.


Veteran Member

Date Joined May 2007
Total Posts : 589
   Posted 5/31/2010 11:39 PM (GMT -7)   
My poop was solid today, and I haven't felt any pain. I am cured. You guys don't have Crohn's because all you need to do is poop solid poop and it's cured. Wimps.

Also, my poop is made of rainbows and theres a leprechaun living in my colon. He gives me gold.
Diagnosed with Crohn's late December 2004. Narrowly avoiding a full-blown flare on Azathioprine (50mg daily).

Veteran Member

Date Joined May 2009
Total Posts : 703
   Posted 6/1/2010 1:54 AM (GMT -7)   
I just skimmed thru this thread but... VICODIN CURES CROHNS???? Oh man that's fantastic!! I'll be sure to ask my gastro for a script next time I see him!

I have a relative that's really distrustful of doctors and was disappointed in me when I "gave up" and went to a gastro clinic after trying to get over my first flare by modifying my diet for a few weeks. Since then I've heard all sorts of stuff, which I bounce off my gastro...
Cimzia, Asacol

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 6/1/2010 3:11 AM (GMT -7)   
uggghh....ya well tell that to the tummy n the poopette this am
if they only really knew
none of my family get ..it..at all and 2 of them are nurses
i feel sorry for the young girl as well
its a dd that we all know bites ya in the a..when ya think its chillin
         ..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic
             Crohns.. PG ..Seizures..Neuropathy..A/P...Fibro..Deaf 
        medications..lyrica..diazepam bid..ativan..prn...trazadone at hs..folic acid    
                                    mtx..potassium..dilantin..pentasa..lomotil..val acid
                                      DONATE TO www.HealingWell.com
                                       I AM STRONGER NOW THAN EVER

Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 6/1/2010 5:24 AM (GMT -7)   
GDen...no they are not saying that. I just used that as an example to describe the family's thoughts on medicine. They love the attention and have taken so many aspirin that now they "have" to take vicodin because why take a little pill when you collect up everyone else's Rx meds to use. Hmm wonder why the one kid is in rehab for Rx med addiction hmmm. I have picked my MIL up from the hospital because she had an attack...reality is she felt she was being ignored and this was her way of getting attention.

My guess...CD did not give the niece enough attention for the mom to think it was a big deal. And this niece is the one everyone ignores so she shouldn;t have it anyway. I just hate that a doctor said it "can go away". i have a "mild" case....limited flares, mostly sypmtoms due to one major surgery....but I know what happens when i don't take my maintenance meds.

urgh....in laws are bad, but docs that feed into their delusions is worse
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa, cholestyramine, iron and vitamin supplements. 
Prepare for the future, but live in the present

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, January 16, 2018 1:49 PM (GMT -7)
There are a total of 2,917,703 posts in 320,154 threads.
View Active Threads

Who's Online
This forum has 159240 registered members. Please welcome our newest member, owl14.
398 Guest(s), 9 Registered Member(s) are currently online.  Details
PeteZa, Spring, Dale B, Michael_T, ppm guy, timbom, NiceCupOfTea, 25years, Jack & Diane