Thanks for the input guys!
I do keep a Word document to jot down questions between my 6-month interval appointments with my GI. But this time, I've only had 2 weeks since my "progression" diagnosis to come up with questions and I'm so anxious about a new drug that my mind is blank.
I do have a list of drugs I want to ask why he's not choosing to go with one of those rather than Humira. I didn't have LDN on my list - thanks for that suggestion, CrohnieMan.
NiceCupofTea - I'm putting that question down - that's a good one for me. I've been on Colazal since 2004. I started flaring in 2008 and it lasted through most of 2009. During that time they did an Upper GI's with SMBT, an upper endoscopy, an Abdominal CT Scan, removed my Gall Bladder, bloodwork and put me on a round of Prednisone twice but never did they feel the results of any of that warranted a Colonoscopy. about a month before my Colonoscopy 2 weeks ago, my GI said he thought my current symptoms sounded a lot like IBS & mild Colitis. So I think he was as surprised as me to see what he saw on the scope. Since NONE of those other tests besides the Colonoscopy told him I was flaring, then I'd like to know how, after putting me on Humira, is he going to be able to tell it's working withOUT doing a scope.
Sometimes things are all in the QUESTION you ask...and I just know I'm going to walk away of Friday and say, "DOH! Why didn't I ask THAT?!" :)
Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
Current Rx's: Colazal (generic), Omeprazole (PRN), Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills; Slow Fe (PRN)
Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
4/7/09: Gall bladder removal laproscopic surgery (gall stones)