Possible Crohnes

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Regular Member

Date Joined Nov 2009
Total Posts : 20
   Posted 6/1/2010 8:40 AM (GMT -7)   
Hi there,
Very new to this and will probably miss a mountain of info about my condition as there has been a lot to contend with.
I started with stomach cramps last July and just kind of put up with it thinking it would go away. Every time I ate I got the cramps followed by bloatedness and diahorea. Went to the doctors after I came back from my holiday which was beginning August. Doctor sent me for usual blood test etc. Showed nothing but inflammation and he thought it was IBS.
Over time because of the runs I got piles. I have never felt pain like this in my life. I tried everything the doctor gave me, suppositories, creams etc. Nothing would stop the pain.
After having to make a trip to the emergency after hours doctor I ended up being admitted to hospital. Doctor at hospital told nurses to give me ice packs and pain relief. Left hospital 3 days later pilled up to the eyeballs thinking I would be ok, the pain seemed to have subsided somewhat. Next day I was back to the doctors, immense pain , this time fever and a sore buttock. Back to docs, diagnosed with Perianal abscess! Three weeks later, 5 operations (on a scale of one to ten size wise they said it was 10) I was out of hospital having had the abscess drained and a seton stitch put in. I think most of the scar has forme now which looks ugly as sin and also still have the stitch in. I don't think they want to take it out because of the possiblility of it reoccuring, which I can understand. They say they could change it for a smaller one in time. I now have the stomach pains again and am waiting for my consultant to arrange an appointment for a possible colonoscopy to see if I could have Crohns disease. They did do tests in hospital whilst I was in for this but there wasn't enough evidence to suggest that it was crohnes.
Phew, anyone else experienced anything similar >)

Veteran Member

Date Joined May 2010
Total Posts : 8384
   Posted 6/1/2010 9:10 AM (GMT -7)   

If you haven't done this yet, you should start keeping a journal to record what you eat, how you feel before/after meals, what your bowel movements are like (how frequent, appearance).  This will help you and your doctor understand better what's going on with your stomach ache.

My symptoms really became noticable during my first pregnancy - I became lactose intolerant, which is not so unusual, but caused me a lot of gas, nausea and pain until I started adding lactase pills to my meals.  Maybe that's something for you to consider for yourself - most adults are lactose intolerant to some degree.  What I discovered later is that my lactose intolerance is better wor worse depending on the status of my Crohn's disease - inflammation in the ileum affects lactase production which therefore makes me feel worse if I eat a lot of dairy during a flare.

There seems to be some new evidence also about gluten intolerance - I don't know if your doctor has mentioned this to you, but it may be something to consider also.  Many adults are being diagnosed with this condition later in life - it has generally been thought that you either can or cannot digest gluten, and that you'd discover this in childhood, but this theory seems to be failing.

My diagnosis with Crohn's took many years.  I think that's a very common experience.  The path to a diagnosis for me started with bloody stools and diarrhea, and got more focused with the addition of joint pain and fatigue.  I feel a lot better with the right medications, which also helps confirm the diagnosis.

I hope that you get some relief from your pain and a more helpful diagnosis soon.

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