Im only 4 months into being diagnosed with Crohn's and already fed up, for those of you who have had this for years, I cant even imagine.
So my visit to my GI initially was pain in my upper left quadrant, under my ribs. When they did my colonscopy, they actually found Crohns in the opposite area, lower right quadrant, in my illeum. I had never had pain or discomfort here, so was surprised. I was put on Pentasa, then Asacol HD, and now Entocort. When I take the medicines, it makes this pain in my upper left quadrant, very much more apparent. When I stop, I get the pain now in my lower right, which would make sense, in my terminal illeum. So it is a constant struggle. Take the medicine and feel awful in one area, or not take the medicine and feel awful in the other. I feel as if the pain in my upper left is not Crohns, but rather, any of these medicines I have taken so far is irritating something along my tract. Be it my pancreas, stomach, spleen (anything else in that area?) as it doesnt feel like a typical Crohns pain. Since, Ive had a CT scan done, and they called me and said it looks normal, whatever that means. I havent had any blood tests since, and wondering if another test could offer insight (Pill cam?)
I hate my GI. It takes forever to get in to see him. When I call and complain all he does is switch my medicine. I dont want to call him again. Im currently on Entocort, my third medicine, and I feel like if I call and complain, hes going to switch me to another medicine, without seeing me, and this next medicine will do the same exact thing the first three have. Make me feel better in one area, worse in another. Has anyone else had issues similar to this? Has anyone else gone through this many medicines in as fast a time?
I am very much considering switching GI's, but have no idea who would be a good doctor to go to. Is anyone here in the Cincinnati area and can recommend a good GI?
Thanks for listening.