I can't believe my last post was in 2007 -- I'm sorry to have missed what's going on with everyone. My CD was diagnosed (terminal ilieum) back in September 07 at the age of 43. Like many, I had symptoms for years but was never diagnosed before this. I had a typically rough "first experience" with an 8 day hospitalization and a number of months with follow up medications, side effects etc.
But, then I miraculously felt really really well from a CD perspective -- little or no symptoms. I've had a personally very stressful two years and actually gained quite a bit of weight (not in a good way) so since I was stressed, symptom free and suddenly fat, I self-diagnosed myself right out of a CD diagnosis without consulting my GI (brilliant!) discontinued my Pentasa and 6 MP, and resumed all my crazy regular eating of foods that had previously bothered me -- Diet Coke (4+/day), nuts, salads, McD fries on stressed out days, etc.
So, it will not surprise you to hear that I am now a MESS! A few months ago I had what I thought was a stomach bug, but now realize was probably a partial blockage -- fever, vomiting, diarrhea, pain etc. The acute pain went away but since then I've been having increasingly bad diarrhea, incredible abdominal tenderness, gassiness, bloating, low or no tolerance for solid foods, severe headaches and all over achiness. Exhaustion. Some bleeding too ...
Did I call my GI? No! I was embarrassed because I hadn't been in so long and because I gained weight and didn't want him to see me (again, brilliant, right?).
This week, the diarrhea and discomfort has progressed to an unmanageable point - literally soiling clothes at work, etc. You get the picture. I went to my PCP yesterday and am seeing GI tomorrow. The PCP gave me the (gentle but necessary) "why in the world did you wait so long" speech and started the regular round of things: steroids, Pentasa, Prilosec, pain. She did not order anything but blood tests because the GI wants to see me tomorrow and possibly get a CT.
PCP also told me to go home, get in bed and not move until my GI appt -- or she would hospitalize me. So, I dropped everything, did as I was told, and after just a day, have to admit that I do feel a little better. Staying in bed.
GI tomorrow, but I thought I'd say hello, fess up and reconnect.
Your stupid (and now stressed, fat and flaring) friend,