New user here! I'm a 23 y/o female with Crohn's disease. A little about me: Within the past year, I graduated from graduate school with my Master's in Occupational Therapy, started working, got married, bought a house, and a new car... Its been a whirl-wind year! As one can imagine, the stress of learning how to balance all of my new roles has been difficult, and my CD has been creeping back into the picture ever since.
I was diagnosed with CD in 2007, after months of mis-diagnosis and misery. Immediately, I had a small bowel resection (18") secondary to semi-complete obstruction. Appendectomy at that time as well. Was treated with 6MP for one year, and upon follow up scope, active Crohn's had not only returned but had spread to large intestines as well. Switched to Remicade infusions, every 8 weeks, at that time, and have been on them since. At scope in August, '09, I was given wonderful news - - there was NO signs of active CD at all! Symptoms were pretty well controlled, and diet was starting to be able to be expanded. Symptoms began increasing in frequency, most noticeable around the time I was due for next infusion. Bumped frequency to every 7 weeks for infusions.
Just got back from vacation in Napa Valley... and found myself in the ER Monday afternoon. I was admitted for what I thought was my first 'real' flare.
Currently, CT w/contrast showed active inflammation at prior resection site, as well as in proximal large intestines. Had a enteroscopy and colonoscopy today -- both showed no active inflammation of CD. For the first time, I will be having a capsule-endoscomy (picture/video capsule that I swallow, and takes pictures throughout GI tract till I pass it). This test is scheduled for tomorrow a.m.! I'm nervous - but they are unable to see the inflammation from the upper or lower scope equipment. GI is thinking I am having a partial obstruction, stricture, active inflammation, or adhesions separating from abdominal wall -- in any case, doesn't sound overtly surgical.
I've never used forums, so bare with me please as I "learn the ropes". My husband uses forums for everything - from deciding between brands of tvs, to models of cars, to self-help, so I thought...why not try it, too!
I'm looking for support now more than ever, as I am nervous for what these tests results might show, and for a possible second surgery... Nervous to be told perhaps Remicade isn't "the" answer... Nervous that my CD may begin to get out of my control again, and begin controlling me...
Thanks to all who are reading this, and I look forward to getting into this network of support!
~ Diagnosed with Crohn's disease in 2007; 18" small bowel removed in 2007; appendix removed in 2007; 6MP 2007-2008 with no help; Remicade 2008-present with moderate help; Prednisone with flares -- Chronic migraines diagnosed in 2009; currently moderately controlled w/Gabapentin, Co-Q-10, and no aspertame or caffeine -- Fibromyalgia diagnosed in 2010; currently mildly controlled w/Gabapentin and exercise ~