Sorry for the lack of information. I was diagnosed through a colonoscopy, where they found "textbook" Crohn's in my distal ileum. Same with the second doctor. I've had everything but a pillcam, which my doc in Cleveland doesn't want to do (I've talked to him about it), for unknown reasons. There was inflammation on the endoscopy that he did, but he said he thought it wasn't Crohn's...didn't think it was Celiac's either.
My WBCs are constantly elevated, I'm anemic, my SED rate is elevated, I have recurrent fevers between 100-101 degrees, and erythema nodosum.
The meds I was on worked for about 2 months (entocort and pentasa), then I became symptomatic again (before I was moving to Chicago for college). My doctor in Chicago (the same one I want to go back to) did some more of the same and said my Crohn's was still active. She put me on 6MP which I didn't tolerate well. My last doc put me on Humira which did work, but now this guy in Cleveland took me off everything.
I'm frustrated that I'm not being treated. If it is Crohn's (God willing it's not), then I don't want to be off a matinance med for too long.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Off every med while the doctors contemplate my diagnosis.