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Regular Member

Date Joined Apr 2010
Total Posts : 20
   Posted 6/12/2010 11:32 PM (GMT -7)   
Remicade and Pred not working anymore. My GI told me that i need surgery.... :( Going to the doc on mon to talk about the surgey. Any one had surgery?, im scare but i think is time nothing is working anymore..

Regular Member

Date Joined Mar 2010
Total Posts : 49
   Posted 6/13/2010 12:29 AM (GMT -7)   
I was in the same situation and ended up having surgery.. Getting rid of the really inflamed area made a huge difference for me, as I could not live my life prior to surgery.

I would meet with a surgeon and discuss the risks and benefits of surgery, as well as any fears you may have. Although, ultimately, if you need surgery, you should go for it. It sucks to think about, but it may radically change your life for the better.
Diagnosed at 17, currently 23 :)  Have had 1 resection so far.  It's been an adventure!

Veteran Member

Date Joined Jun 2009
Total Posts : 985
   Posted 6/13/2010 4:05 AM (GMT -7)   
I had the j-pouch surgery but I did not know I had Crohns and not UC until this past week
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again
6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease
Lomotil 2 Tsp. (4/day), Flaygl 500 mg (2/day), TPN 14 hrs/day, IV fluids 4 hrs/day, Prednisone 5 mg (1/day), Florinef .05mg (1/day), Culturelle (1/day), Entocort 3 mg (3/day)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/13/2010 7:17 AM (GMT -7)   
I have had 2 open resections myself. Most feel that why did they wait so long for the surgery, as they tend to feel so much better afterwards. Hope your surgery leads to a long long remission. Hugs
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 6/13/2010 8:28 AM (GMT -7)   
Hi, I too have had resections in the past managed to get a 15 yr remmision with the 1st one! Had four small ones done last Jan Its amazing how great you feel once you get over the op and are able to eat with no pain. Wishing you all the very best with the surgery. Bev x wink
Diagnosed with crohns at 13 now 43
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 30mg (for Anxiety.)

" I may not be there yet, but I'm closer than I was yesterday."

Veteran Member

Date Joined May 2009
Total Posts : 506
   Posted 6/13/2010 7:37 PM (GMT -7)   
Deciding to have surgery is one of the best decisions I've made. If your quality of life is to the point of nothing but misery, it's probably a good idea to go under the knife.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 6/14/2010 10:18 AM (GMT -7)   
Surgery is scarey. BUT - God blessed me w/a 20 year remission after my resection. May he bless you w/a long remission as well.

Get up and walk as soon and as much as posssible. Grab a pillow and hold it to your belly when you cough or laugh or roll over or sit up after surgery. That pillow makes it easier and more comfortable to do so during the first few days after surgery. And getting up and walking, walking as much as possible, speeds your recovery and wakes your intestines up and gets them working better and sooner which aids recovery.
My computer says I need to upgrade my brain to be compatible with its new software.

Regular Member

Date Joined Apr 2010
Total Posts : 20
   Posted 6/15/2010 10:19 PM (GMT -7)   

Regular Member

Date Joined Mar 2010
Total Posts : 49
   Posted 6/16/2010 12:06 PM (GMT -7)   
I was on prednisone for at least 8 weeks prior to surgery, and continued with it through the surgery, and after for about 6 more weeks. They told me it would take a bit longer to heal, but that it shouldn't really effect me that much. The only thing that I had because of it was back pain, which I have always had when on prednisone.
Diagnosed at 17, currently 23 :)  Have had 1 resection so far.  It's been an adventure!

Regular Member

Date Joined Feb 2007
Total Posts : 430
   Posted 6/17/2010 9:47 AM (GMT -7)   
Don't worry about the prednisone, my experience was much like Bibi's. You'll do fine and you'll be so much happier approx. 6 weeks after the surgery.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 6/17/2010 11:07 AM (GMT -7)   
I have had 3 resections. I was always on long term prednisone with each of them. As far as the healing, instead of having the staples removed at 10 days (or something like that), I had them out at 14. The healing is a little delayed. It isn't a reason to put off surgery if it means getting quality of life back. I had the 3 resections pretty close together because I had spent 10 years undiagnosed and untreated, thus I had a lot of damaged to undo. After that was taken care of, I have lived a pretty calm life, CD wise. It was a matter of finding the right combination of medication and the right diet. I have been given quality of life I didn't have before my resections. Yes the healing is not fun, but once you recover, you will probably be much happier, for a good long time.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

artist guy
Veteran Member

Date Joined Jan 2010
Total Posts : 1373
   Posted 6/17/2010 3:11 PM (GMT -7)   
Ive had 4 surgeries, 2 resections, both times brought remission, around 15 years ea time, but i didn't take any meds, i wish i had now, because I'm at the point that they really can't operate any more so med's are my only option, but my cd is in my throat and cankersores with my throat always feels like it is swollen, hard to swallow certain foods, my tongue also gets leasions on it. surgery certainly can put into remission, but your body will be permantenly changed when they remove any disease, they 9ft of small bowel, that alone can be disableing, so that being said, it certainly is better than being in horrible pain, in my case obstuction's caused both resection surgeries

artist guy

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