krw: sorry to hear it didn't work for you and actually made things worse.
Thanks to everyone else for your input.
beave: I hear you and trust me, I'm skeptical.....which is why I asked for input. I know nothing about the product other than what my GI told me and what I've found via online research. Some of the reviews are wonderful, some absolutely horrible. I can only trust at this point. The only way I'm going to know if it works FOR ME is to give it a try. Yup, it's outrageously expensive, and it's not like we're rolling in the dough, but I am willing to give it a try. If there's no improvement, I'm done with it.
There were no fancy brochures, no marketing materials at all involved in our conversation at my GI's office - he verbally gave me the main website, I ordered from there and was randomly assigned an online customer service rep in my area, who happens to be female. My GI is male. There is no monetary gain on his part that I am aware of. He informed me there were scientific studies conducted by Yale, but since I wasn't provided any material, I have no data to provide to you.
I may very well be back here tomorrow, a week or a month from now complaining that the product is nothing but an expensive scam or that it made me feel worse. Feel free at that point to say "I told you so".
In the meantime, my fingers are crossed. Took my first dose this morning. I'll keep you all posted!
38 y.o. F. Diagnosed with Crohn's in 2009.
Never had symptoms until after my daughter was born in 2006.
Currently taking probiotics and digestive enzymes.
Entocort on standby in the event of a flare.